For people living with incurable cancer only
This group is aimed only at people who have had an incurable diagnosis themselves, as we have had feedback that they would like a safe space to share their feelings openly among themselves.
If you have a loved one with incurable cancer, you are very welcome on the Online Community as a whole, but we would ask that you respect the wishes of people with incurable cancer and not post in this particular group. Instead, you will find really good support in the Carers group, the relevant cancer type group and the supporting someone with incurable cancer group.
Hi Maz, how are you doing? Are you home yet? You're so quiet...
Yes I finally managed to get home and my family have arrived to visit for half term.
I am feeling much better now I am home but I still have most of the symptoms and I really don't understand what really has gone on and what is happening.
I am due to see the oncologist on 5th March and am feeling I just want to hide my head in the sand for a while. I have a terrible feeling they will try to stop my drugs again.
I also feel that I do need to address at least some of what happened in hospital with the relevant people but need to take stock first.
Things are never easy.
Oh well Maz59, so it sounds like all what you have gone trough in hospital was for nothing?? That's not right.
I wish you that your family will spoil and love you to make you feel better.
I am glad to hear you’re at home and hopefully being spoiled rotten. Taking stock is a good idea. I find writing things down and putting the writing to one side for a few days before reading it through can help this
Lots of love
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