For people living with incurable cancer only
This group is aimed only at people who have had an incurable diagnosis themselves, as we have had feedback that they would like a safe space to share their feelings openly among themselves.
If you have a loved one with incurable cancer, you are very welcome on the Online Community as a whole, but we would ask that you respect the wishes of people with incurable cancer and not post in this particular group. Instead, you will find really good support in the Carers group, the relevant cancer type group and the supporting someone with incurable cancer group.
looking forward to hearing that you are a stable mable soon xx
Also notice a food theme in your posts - chips, chocolate ginger biscuits- definitely on my wavelength
I’m all out of chocolate ginger biscuits but fear not! They are on the shopping list. Today’s three good things:
1. A glorious walk in the sunshine with a friend. We found an amazing path through the fields where the terrain is flatter than near where I live. The views went on for miles, the birds sang. But goodness some of it was muddy and so was the dog by the end
2. I took the first step towards selling up where I live to move me and my younger daughter near my family. An estate agent gave me what I feel is an over optimistic value on my house. Meanwhile, the house next door to my niece is on the market and we have a viewing booked. It’s starting to feel real
3. My daughter fell asleep just as I put a cup of tea down in front of her so I got to drink two cups of tea
What is a community champ?
daloni I’m not sure how I missed your amazing ca125 news, that is some difference, fingers crossed the scan will show something similar when it comes. So glad this trial is showing promise (touch wood, early days, everything crossed etc) xxxx
The sun shone again today so I had a lovely, but chilly, walk around the cricket ground with Noodle. She ran like a mad thing and was a joy to watch, ears flapping behind her.
My second good thing involved a bar of Green and Black’s butterscotch chocolate. Just one more piece over the course of the day ended with me throwing the wrapper on the fire.
My third was doing a supermarket shop. It was great to have the energy - it’s been a while.
1. Completed 8 of 8 docetaxel today - now my body is to get a rest. Ct scan on 7 march, review on 12th and then approx every 3 months - long may they continue
2. Went so well today- got in and started 30 mins early with no probs. Weather was also reasonably pleasant that able to slow walk to station rather than taxi - enjoyed it
3. A more pleasant side effect of chemo day - even with steroids able to sleep well because of all the other drugs pumped in me so have some crumpets and early night
Wow. It’s so great finishing a long stint of chemo and it sounds like you had a good day too. I do hope your ct scan shows things have calmed down and that you get bored of three monthly reviews because they continue for a long, long time.
My three good things
1. My daughter and I made chocolate salted caramel popcorn bars. Seriously good and we enjoyed cooking together
2. The sunshine. Goodness it was cold and windy but the sun made up for it
3. The sight of the dog with her head out of the window as we drove along, ears flapping
thank you. Love the sound the chocolate popcorn bars - can you send the recipe please? Xxx
1. make pop corn using 85g of popping corn. Remove any unpopped kernels. 2. make a salted caramel sauce with 100g of sugar, 3tbs water, 100ml double cream, 30g butter and a good pinch of sea salt. Pour this on the pop corn and stir to coat the corn thoroughly 3. place the caramel pop corn in a brownie tin lined with grease proof paper and press down with the back of a spoon
4. melt 100g of milk chocolate and drizzle this over the caramel corn. Use a piece of grease proof paper over the top to press the whole lot down firmly
5. pop the tray in the fridge for an hour or so. Remove, cut into 8 large slices or 12 smaller ones.
They are sooooo good and gluten free to boot
Thank you -:definitely will try this when my taste buds return. Xxx
My three good things today
1. walking in the sun. Ok it was cold and windy but what are coats, gloves and scarves for? But the sun. I do believe I have a bit of colour in my face.
2. just getting everything done. Hair cut, meeting friend, walking dog, being home to meet the lady from young carers and my daughter’s science tutor, making supper...it felt very busy but everything got done and I didn’t have to collapse in a heap at any point
3. this one is the same as a couple of days ago: the sight in my wing mirror of Noodle’s face sticking out of the window of the moving car. Makes me smile every time. It’s the small things. Although of course owning a car, being allowed to drive and having a dog are actually big things.
I'll second that! My 3 good things are along the same lines.
1. Feeling some of my usual spark coming back and feeling my days are more productive. Cooked a gorgeous beouf bourguignon, possibly down to the liberal amounts of red wine in it, but it lasted 2 days and I'm getting interested in cooking again. Can't wait to try Daloni's risotto.
2. Having my drivers licence and car. The independence is priceless, and being able to 'pop out' without having to plan ahead is still a novelty.
3.Being able to take Sula to the Common and watch her antics as she rolls in unmentionable smells and chases the squirrels. Nothing beats being outdoors to lift your spirits.
Had a lovely weekend with a gorgeous little person. Felt well enough to do a lot of things with her and really enjoyed her company.
Introduced her to cut out dress-up dolls which kept her fascinated for hours.
you also put a smile on my face remembering the hours of fun I had when I played with cut out dress up dolls - didn't know they still did them
I used to love them but I just made these from card and paper and the little one coloured them in. Kept her busy for hours.
Very creative, Maybug And good thinking.
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