For people living with incurable cancer only
This group is aimed only at people who have had an incurable diagnosis themselves, as we have had feedback that they would like a safe space to share their feelings openly among themselves.
If you have a loved one with incurable cancer, you are very welcome on the Online Community as a whole, but we would ask that you respect the wishes of people with incurable cancer and not post in this particular group. Instead, you will find really good support in the Carers group, the relevant cancer type group and the supporting someone with incurable cancer group.
Thanks.Daisy Doo. I was able to tell the Eribulin wasnt working by the continued growth of alien boob & also baby alien boob. They look a right mess now & though the tumours haven't broken the skin (yet), theres bn chaffing right were the underwire of my bra sits - have reverted to wearing sports bras & crop top thingys. I also have an enlarged lymph node under my arm.
It's funny how u know urself things aren't working despite the medics saying "give the treatment time..."
Not sure about the next one - all depends on wot the surgeon says. I have a depressing feeling he'll say no but wot else will I do?
Abs knackered now as we were up at 4am & took child 2 airport & back by 8am. A 120 mile round trip
#lazyday #sofawednesday #matchsticks4myeyes
Hard working, bubbly, positive
Yuck early starts are never fun. Afternoon nap time?!!
I also call mine an alien boob! Seems to be similar in description and intelligence. Stupid things. Will have everything crossed that they just move on down the list of things to try. Doesn't seem right that they shouldn't.
Button16 my littlest goes to nursery 3 days a week while I am at work/or having treatment! He loves it there - is great for learning, confidence, friendships etc. I think it also helps them when they start school. I then try to do fun things etc on my.days with him. Sometimes depending on circumstances you are entitled to funding for free childcare from 2 years or you may get help with tax credits (the childcare element) I don't think she is quite old enough for pre schoold yet as I think that is 3 but even if she went 1 day a week that would give you a break and hopefully give you the energy/time on the other days. Have a little look round your area, there are big chain nurseries, smaller ones as well as childminders
Thanx daisydoo. She does 1 day a week at the mo at the local nursery which she loves. I tried getting her im after chemo day but they are fully booked.
Maybe speak,with your doc. I originally had chemo on a Friday. I explained that that was one of my days at home with LO + it affected my weekend. She asked what day I'd prefer and they moved it all for me from the next cycle. I'm sure they will be able to accommodate to make your life better xx
Yes, mine were accommodating too. I had a few clashes and logistical issues with kids and they always accommodated me. Was very grateful. Worth asking.
Hope you're coping okay with the treatment, I think being sick and having to look after a small child should be classified as torture. No matter how lovely they are and how much you want to be with them, being really unwell is hard around tiny humans. Hoping you have lots of help so you can just enjoy the cuddles.
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