For people living with incurable cancer only
This group is aimed only at people who have had an incurable diagnosis themselves, as we have had feedback that they would like a safe space to share their feelings openly among themselves.
If you have a loved one with incurable cancer, you are very welcome on the Online Community as a whole, but we would ask that you respect the wishes of people with incurable cancer and not post in this particular group. Instead, you will find really good support in the Carers group, the relevant cancer type group and the supporting someone with incurable cancer group.
MsLin I agree, it’s good to have ‘safe spaces’ where you don’t talk about your illness, even if people know about it.
What a lovely day you’ve had Daloni. I’m sure you slept well.
1. I finished the 6th cycle and whatever the results I feel I have accomplished something and wasn’t beaten by it.
2. I feel free again. I did have my PICC line removed today. Such a simple thing makes all the difference. With it in it was a constant reminder of my tie to the hospital. Now I can enjoy two weeks breaks between maintenance treatments without that reminder.
3. Today my eldest granddaughter received the highest achievement award for geography in her year group. Well deserved she works really hard.
Woo hoo! Chemo done! PICC line out! A whole two weeks between appointments! You will hardly know yourself SussexOvarian.
I have had a lovely day today.
1. A river swim with a friend. There were so many dragonflies including one that I’ve since identified as a Scarce Chaser. There were two males, marked by a pale blue patch in their bodies and blue eyes, sunning themselves on the riverbank
2. A hot sausage roll for lunch
3. My girls are home from their expedition. Lots to tell me. Let the laundry begin....
What is a community champ?
Love the picture of two dragonflies sunning themselves on the bank. Such a name: Scarce Chaser. Sounds dashing.
Reading some of the recent posts by my fellow incurables, it seems almost criminal to admit to having three good things!
But here they are:
1) Biopsy negative. Gynaecologic Oncologist says no reason to see me again.
2) Drive in country as celebratory treat. Saw beautiful swathes of cut hay and some fields of yellow rapeseed canola.
3) The neighbours' Lime is blooming and fragrance drifting across to my garden where I sit inhaling, inhaling.
That is good news about your biopsy. Is it a weight off your mind?
My three good things from yesterday
1. Rain! My goodness did the garden need it
2. Brunch with my younger daughter
3. Watching James Acaster on Netflix. He’s very funny
1. When I read your message I gasped about your biopsy Ms Lin. I so needed some good news so that’s my first good thing for many days.
2. A cry with my eldest helped.
3. I know tomorrow I’ll feel better.
1. Dinner with my neighbours.
2. A friend and I went to a quilt show at the lovely Lullingstone Castle. Awesome quilts, beautiful garden too. And cake.
3. My younger daughter held a party last night. I had 20 15-year-olds dancing in a gazebo in the garden. She planned and organised it extremely well, had a lot of fun and was u bright and early to clear up. She’s a star
Lovely lunch with two very best friends
Nice walk in a country park with my husband
Met a man who collects bricks and knows all about the history of brick making. I love a harmless eccentric.
My 3 from the last couple of days
I spent 2 hours coaching my lovely 17 year old neice on interview techniques (my job in a former life). She had zero confidence and was struggling. She got the job! Yay.
I spent a fantastic weekend with my OH in Surrey doing a hobby we haven't done for ages (very mysterious and no we are not swingers lol)
The surgeon has decided my cord compression isn't as bad as 1st feared and we can hang fire on surgery for the time being.
Love to all.
Reading everyone's good things is definitely a good thing.
Yes, SussexO sometimes a good cry is a good thing. The hope of a better tomorrow always a good thing.
Daloni, I also saw a quilt show on Sunday afternoon, but not at a great house or castle but a small local one in the school. In years past I have shown a quilt occasionally.
Enjoyed imagining Maybug's man who collects bricks and knows all about them.
Good news Kirky68, of your daughter's job and of the surgeon's decision concerning the compression.
Now, 3 for today:
1) Two dark purplish, almost chocolate coloured lillie's in a nearby garden. Seen on a short walk.
2) Still incredibly relieved at biopsy results!! I feel light.
3) A long warm day with butterflies and occasionally sun in the garden.
You should be so proud Daloni of the way your girls are. From the skills you have taught them to the confidence you are building in them. For a 15 year old to organise her own party is amazing. Well done to her and you.
1. I said I’d feel better today!! Tomorrow I’ll feel even better.
2. I had the last of the ‘contracted’ appointments for the Trial today. It was only bloods and short talk with my favourite Doctor but I feel I have fulfilled my part of it all now. She will phone me with MRI/CT results (appts Friday) at the end of next week when they have discussed them at meetings as I can’t take the journey there not knowing what they’re going to say. I prefer it in my own space.
3. Actually tasted my dinner tonight without feeling nausea afterwards.
I’m replying to my own post as I don’t know any other way to add my three good things for today! I hope everyone has survived the heat.
1. I can actually walk around the garden for more than a few minutes at a time. It’s the first time this year that I’ve really been able to do that and now I find I can actually enjoy the sun! My summer starts now!
2. I had my hair shorn today (home hairdresser not hot salon!) Strangely it’s probably shorter than yours Daloni! Really really short! But I feel free. I’m now ready for when I can get away on holiday or get to the beach for a swim. I am so longing for that.
3. I’m back driving again which also gives me freedom and makes that swim nearer.
Hi SussexO, Great you can drive again! Enjoy that yearned for swim when it comes!
Love Annette x
I am so happy to hear how you are improving. I haven’t posted my three good things lately as I’ve been feeling rough, culminating in a trip to A&E last night instead of to the airport to go on holiday. Details in another post.
So my three good things are by way of trying to fund the gratitude that I know helps me stay in a positive place.
1 Listening to the moaning in the A&E waiting room made me realise how hard it must be to work there and grateful for the staff and their ability to remain kind and compassionate
2 I am not in Estonia trying to navigate a foreign healthcare system with frantically worried children alongside
3 The heat seems to be abating. It was 37 degrees in Kent yesterday
Oh Daloni I am so sorry to hear this. That’s so unfair when you have been through so much. I hope at least you are feeling better now.
Sending you lots of love.
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