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For people living with incurable cancer only
This group is aimed only at people who have had an incurable diagnosis themselves, as we have had feedback that they would like a safe space to share their feelings openly among themselves.
If you have a loved one with incurable cancer, you are very welcome on the Online Community as a whole, but we would ask that you respect the wishes of people with incurable cancer and not post in this particular group. Instead, you will find really good support in the Carers group, the relevant cancer type group and the supporting someone with incurable cancer group.
So pleased for you Clare that is such good news. Gives me hope xx
Clare that really is great news. Sometimes we just can't believe when we get some luck.
Hard working, bubbly, positive
Clare, that is the best news! Congratulations!!! I hope it's sinking in and you can breathe easy for a long time to come and enjoy your children. So happy for you xx
Oh Clare! I’ve not been online much the last couple of days so I have just read your incredible news. Today is my birthday and this feels like the best gift to read how well you’ve responded. Long may it last.
Never be afraid to share good news. It’s what we all want to hear - for others and for ourselves. My oncologist has looked into immunotherapy for me - I’m MSI stable so Pembro isn’t likely to work and I’ve got as far as consenting to a trial of a new type of agent twice but fallen at the last hurdle. She reckons we will get there one day.
Live in hope
What is a community champ?
Happy Birthday daloni! Hope you have a great day.
My goodness! Extraordinary, and gives so much hope. Enjoy feeling good, you deserve it. Every day can bring good news.
I can only imagine how this must feel for you. I’m just starting the journey with two kids and I’m the same age as you. You must be absolutely overjoyed at this news! Thanks so much for posting it has given me hope! You sound like you deserve this break enjoy every second (although after what you’ve been through I’m sure I don’t have to tell you that!) congratulations! X
Hi MissAnabel, I just wanted to say that there are a lot more positive outcomes these days than there has been for many years! Lots of these new treatments work well for quite a long time to either slow down or shrink cancer! Where there's life there's hope! Be assured miracles DO happen! You haven't written any information on your Profile Page, so I don't know what type of cancer you have. Are you on treatment at the moment?
Love Annette x
Ah I must do that! I’ve just been diagnosed with papillary thyroid cancer with follicular variant. Bit scared but hearing lots of positive stories so starting to feel better about it. Thanks for the reassurance I’m trying to stay positive and have been hearing lots of positive stories. I think once the initial shock has gone I am starting to get used to it. X
Hi Miss Annabel
sorry to hear about your diagnosis. Yes the first few weeks can be very scary and you can’t seem to think of much else, but believe me after a while it gets easier to stay positive (thanks in a good part from reading posts by these wonderful people) and also you can go quite a few hours without thinking cancer.
lots of love to you and don’t &or get w3 are here day and night if you need someone to talk to
Oh Clare that's just wonderful. Good news. And time. So very elated for you.
Long may what works, work!
Thank you for this wonderful news. I am being considered for lenvatinib with pembolizumab on a clinical trial if that is the side that I get. You have given me hope. I have three children and only hope to be here for them, they are my world.
that looks a promising combo - weaken the cancer cells and hit them with the immune system. This kind of approach is being used more and more. I’m on a similar combo trialling chemo plus a whizzy new tablet designed to kick start the immune system.
excuse me if I’m wrong but I don’t think I’ve seen you post here before? Welcome - and I hope to get to know you better. I’m a mum too so I know what you mean. If you click on where my name is highlighted you can see my story (as it were) in my profile. Maybe yih could fill in yours too so we can know better how to support you?
XxxYY, A warm welcome! I'm pleased to hear you are being considered for a trial. Lots of these new combos are working well! How soon will you find out if you are to start the trial! Please keep us posted!
Clare, has your good news sunk in yet? I think whether it's good or bad news, it does take time to fully sink in! I'm sure you feel as if a weight has been lifted off your shoulders but at the same time you can't quite believe it's true!!
Hi Gobaith, sorry to take so long to reply to your answer to me. I don't get all the email notifications at times frustratingly and I've just searched for it.
The Pembrolizumab sounds great and I have made a note of it for if my treatment stops working. I was told Immunotherapy doesn't work on brain mets so now I can show them yr reply to me and say yes it does!
My PARP Inhibitor sounds very similar and I just get tired and it causes my Haemoglobin to drop and I get breathless on exertion. I still managed to go on my step machine this morning tho and am back at work for 10 hours a week.
Fingers crossed our drugs continue to work for us for a long time.
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