End of life - end of life patients only

This subgroup is a dedicated place for members to discuss the particular impact of end of life. This is a group for end of life patients only.

Advantages of being treated as a palliative patient.

Popgate
Posted by

Hi there nice of you to think about me had a few wobbles but fighting on in my usual way I wonder why it is you do stupid things that when you are already in a low mood you put yourself through something that adds to you feeling even worse I watched a movie the other day called wit with Emma Thomson playing an incurable cancer patient and I can't get the film out of my head so brilliantly played by her and so realistic it was like watching me in the role I knew it would upset me but I still watched it my best friend told me off about watching it but I felt I had to got the dreaded scan letter the other day for the 5th March so as usual that sets me off then consultant 2 weeks after that so my best friend is working overtime on her comedy laughter moments to try and put me in a positive mood she is so amazing and supportive one in a million person couldn't ask for anyone better but I am determined to keep fighting on I hope you are ok as well you are such an important person on here giving support and advice to everyone xx

Flippen
daloni
Posted by

Hi Flippen

Oh I know what you mean! Sometimes I’m my own worst enemy too. Although, now I come to think of it, I wonder if we watch these sad films (or read these books) because we are feeling sad and watching the film allows us to let it out? 

Glad to hear you’re still fighting on. I hope you’re scan is uneventful and that you get good results when you see the consultant 

lots of love 

xxx

Popgate
Posted by

Hi there thanks for your support as always means a lot I have just had to laugh at myself when you say uneventful getting me through the consultants door is an event my best friend has to drag me by the hand to get in there she always says it's like taking our dogs to the vets they hate it ha ha ha xxx

Flippen
Maz59
Posted by

It is an odd thing TV man you know I ran into trouble recently and I still don't understand how, the thread seemed fine then whoops. 

Like you I wondered if it would be better just to stop communicating. But you lot came to my rescue and my God have I needed you as I have laid in this hospital bed. 

One thing for sure if you go we all loose out so please keep posting. I know it is very selfish of me but who else do we have if we don't have each other. 

I'd love to know what trouble you managed to cause though. It is upsetting I know but also shows theres life it the old dog.

I am sure you are focusing on your trip next week here's wishing you a safe journey and good time. 

Maz 59 

tvman
Posted by

Hi 

I'm not going away anywhere, how can I leave you when you need support, as well as others. I AM embarrassed that some have almost pleaded with me to stay, that was, and is not my aim. I cringed. I'm so sorry. 

I'm concerned about you Maz , that your temperature will be a barrier to you going home which I know you desperately want. 

Also the exemplary treatment you were experiencing is starting to unravel. You were told you were boiling? You knew that, you wanted to know your temperature. 

I'm looking forward to going on Sunday, but storm Dennis may have a say in that. There are already many flights cancelled today, the numbers will increase and tomorrow will be no better. If we can manage to get away to Stansted from Belfast International at some time on Sunday evening, things will be ok. Although there is only one other train suitable to go to Peterborough from Stansted Airport and we may miss that, I have booked a room in the Premier Inn at Stansted Airport which I can cancel at up to 1pm on Sunday at no charge at all and by then I should know what's occurring  

What happened and why? I'm not allowed to discuss any moderation decision on the site, nor anyone else for that matter! So I'll try to explain, hope I don't get myself into trouble. I'm not going to discuss the actual decision, I shall simply say what happened. What I would like to say to you Maz is I'm disappointed that I can't put my viewpoint. Decision gets made. Then implemented. Full stop.

Well, when I tell you, I'll tell it simply, bones only. Someone said something. I explained they shouldn't do that, read guidelines. Gave them example. However, initial post gets removed for the reason I explained and because mine "made no sense" mine was removed and of course I was informed. Would it not be better leaving both in, others could see and understand, take notice. Having that done touched a raw nerve. That's the simple version.

Maz, I hope you have some info about getting home. By the time I took to write this, you're maybe home, hope so, but I know if I go looking, I risk losing it when I return. To anyone who that has happened to, a little tip. Before leaving your half made post, click on the last words and Select All, then Copy. When you return and it's gone, simply paste it back in. 

To , , /Flippen and others, I can't leave you all with less support than you have, I'd also like to say that I benefit greatly from the emotional lift you give me, I can't lose my good friends' warmth and friendship. 

Love you all

Tvman xx

PS Maz, life in the "old dog"? Are you talking about Daloni again? Lol   Btw, that's a joke, I know my friends will know that but some people around don't have a sense of humour!

My philosophy is simple, love life and family.
Johnty
Posted by

Dear @tvman,

it’s so good to hear from you my friend, I hope you can get to go on your trip, will be keeping my fingers crossed for you. This weather is so disruptive it’s hard to plan anything at the moment. So let’s celebrate making a fresh start in the forum for all of us now the ambiguity between the two groups is about to be clarified. There’s room for all opinions so that no one is left feeling judged.

best wishes

jane

 “ A trouble shared is a trouble halved “
tvman
Posted by

Hi

Love you to bits my dear

Tvman xx

My philosophy is simple, love life and family.
Maz59
Posted by

I feel much happier you are still here with us. 

I got a little worried last night as the temperature seems to keep recurring and my breathing is getting worse. They don't seem to be getting anywhere and yesterday it was told no infection it is all the cancer so I take it that meant live with it. 

However today they are still trying to get antibiotics in. They have tried to cannulate 4 times this morning which I am trying to be very relaxed about but I am pretty sure the doctor said yesterday they didn't need any more IV as I was going oral. All I get told is it is still showing on the system and the doctor isn't working this weekend. 

A lovely medical doctor came today that remembered seeing me last Monday in MAU.  said he was just covering the ward today but my infection markers are double what they were and he thinks I sound like I have a chest infection. He also was totally dumbfounded by how I have managed to be on this ward and for so long. It's like I am some kind of stow away in the system.  

It was my understanding that today I am to stay so I can start some steroids but nothing has come yet. I will ask again soon as I am still hoping it is home tomorrow. 

Maz 59 

Roobarb
Posted by

, so pleased you are back, and I do hope you get away on your holiday to see your nephew, maybe the winds will die down a bit, it’s not too bad over hear just now xxx

tvman
Posted by

Hi Roobarb, better than nephew, daughter and grandson oh, and son in law too, better not forget him!

Tvman xx

My philosophy is simple, love life and family.
Pet1968
Posted by

, i hope your weather will get better for the flight, sending you lots of sunshine from here!!!