Thanks for your reply. I am Helyn's sister and I live in the states. We got back from visiting my dad 2 weeks ago and I am desparate to get back over to him. The docs said 12 months but he just doesn't look like he has that long. He is on 90mg morphine tablets in am and pm and takes liquid morph when needed. I am trying to find out if I should just go back of if I would have enough time when the signs of him going down hill start. He has very cold hands and nose which he has had for 4 weeks now. I know no one can put a time frame but to have any indication is helpful. If we had all the money in the world I would be over now.........,.....Any info anyone has would be gratefully appreciated.Thanks for this great website it helps to know other people have the same feelings etc.......its just so hard trying to get on with day to day stuff when this is going onAngie
So sorry that you find yourself in this situation. My Dad has recently died and when he was alive I too was trying to find out how he was going to deteriorate and wanted more information as that is what I needed, but I personally found info really hard to come by. Now that I have been through the process so to speak I wonder whether info is lacking as everyone is so different. My Dad only lived 9 months from diagnosis, but I believe that he was probably quite advanced when diagnosed, he had been going to the GPs for 5 years with aches and pains and night sweats, people joked that it was the male menopause, poor Dad! In my experience Dad died from secondaries in his brain and so his pain and breathing had not really become a problem. In his last few weeks he could walk around the house unaided, but only short distances and he slept alot, he was probably awake for only maybe 2 hours in the daytime. You mention your Dads yellowish skin, has your Dad had his haemaglobin checked, as anaemia is a symptom of meso, something my Dad suffered from alot. I think it was because my Mum pushed for it to be checked that it was picked up so often. It would often fall to around 8 and he would then get 4 units of blood to get him up to 12 as after, a bit more pushing by My Mum it was agreed that 4 instead of 2 units made a big difference to how Dad felt, anyway it might be worth checking it out.Try to take every day as it comes, hoping that things are good at the moment and you are able to enjoy this sunny weather we are getting, long may it last! I am going back to work in 3 weeks after having a years maternity leave, what a rubbish time to have to return in the middle of the summer, I didn't plan that very well. Best wishesBecky
Your holiday to Scotland sounds lovely and yes I bet the thought of watching the film does make you cry, but it will be a lovely memory of happy times that your family shared together.
I am happy for you to email me, thats not a problem. My Dad suffered with constipation and it drove him to distraction, but he ended up getting on with movicol. Sorry cant really say much about pain relief, as my Dad was just on cocodamol, as pain hadn't got too bad, but we think that this is because he died from secondaries in his brain so chest wise he hadn't become too bad.cheers Beckypaulobeckyworld@hotmail.com
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