General cancer discussions

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“ dexamethasone “ the good the bad and the ugly.

Johnty
Posted by

I decided to put this post in general cancer discussions as it seems to be an issue that is effecting people across the board due to the use of dexamethasone in many different cancer settings.

lets start with the good ! Reduction in pain, increase in appetite and mental energy 

the bad !  Insomnia, constipation and generally shortened fuse.

and the ugly ! Coming down crash bang wallop after the course is over. 

if I’ve missed anything please feel free to free to add your own experiences.

i think it’s a good idea to highlight these issues, especially for the newly diagnosed so that they can monitor their symptoms and separate the symptoms from dex from that of their general cancer treatment. 

best wishes

jane

 “ A trouble shared is a trouble halved “
Johnty
Posted by

Good morning everyone, having gone to bed at 8.30 pm in the vain hope hope of sleeping through the night, here I am wide awake, with enough mental energy to set the world to rights, which isn’t much use in the early hours of Monday morning L.O.L 

best wishes

jane

 “ A trouble shared is a trouble halved “
Andy_C
Posted by

Had my last ones today.   So very much this...

6125
Posted by

Know the feeling and can guarantee I'll  be wide awake until time to get up!!!!

Debs

Johnty
Posted by

 It’s good to know I’m not alone, 40mg for 4 days in a row, three weeks out of four. It’s a pity I’m not cramming for my a levels as it might be of some use to me L.O.L  I am becoming quite good a playing lemmings on my iPad though.

best wishes

jane

 “ A trouble shared is a trouble halved “
6125
Posted by

I think I'll have to learn to post some fab visuals like yours 

Johnty
Posted by

Calling all my fellow dexi midnight runners, I have managed to sleep through till 1am after going to bed at 8:pm, that’s 5 hours which is a result for me. I’ve had a nice hot cup of tea and a couple of biscuits. I am getting the results of a ct scan today so it’s probably unrealistic to expect be floating on a cloud of relaxation ! I hope any one reading this is ok, and it helps to know you are not alone.

best wishes

jane

 “ A trouble shared is a trouble halved “
buttercup01
Posted by

Hi ,I take my Dexamethasone in the mornings.

It's only 0. 5mg/ day tho.

Sue

Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
Johnty
Posted by

morning sue, I do 40mg per day, 4 days in a row and three weeks out of 4. I’m so high, all I need is a magic feather and I could fly across the Atlantic Ocean L.O.L  I’ve got chipmunk cheeks and in the right light look about 5 years old, despite being 56. I’ve often thought about conducting a drug trial with consultants as the participants and sit back and watch them manage with no sleep L.O.L

how are things with you at the moment ? Are you a stable mabel or a worried Wendy !

best wishes

jane

 “ A trouble shared is a trouble halved “
buttercup01
Posted by

Hi

Currently I'm a stable Mabel, thanks to excellent scan results on 7 Jan, where everything had shrunk - after being back on my meds 3 months.

So sorry to hear about your steroid experience - n I think I do badly on them - I can't get off them, coz I don't produce enough of my own ( only having one kidney)

Sue x 

Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.