My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
gayle - what a bleedin hassle you've had - it'll be all the more worth it when you get on that flight and jet off. What do you mean this is the end of treatment - will Martin get more chemo later on? Was so nice you managed to meet Becca and Diane today.ps am i right in hearing you've got 6 cars? do you buy and sell cars in a car lot ??!
Carrie - what a hassle you've had too - what a farce for no reason, do these people not realise youve got more pressing things to do with your time? grrrrrrr for you! - do hope its all sorted.
just a very quick post to say hello and goodnight - have just had a bath and am feeling a bit sad today so after putting the kids to bed am off to bed myself to read and wait for mistresses coming on - highlight of my night! My dad said to my mum last night "that he wished he was f****g dead" that really upset me when i heard that - he had dropped a cup of tea all over himself and was very frustrated. he was okay today when I went down though and it wasnt mentioned again. He's normally so cheerful but in all honesty it it must be soo damn difficult to keep up the positivity when in reality he's obviously devastated at the life he has virtually lost. Oh dear, im sorry for having a bit of a negative night....again. Tomorrow is another day and hopefully brighter for all.
Hi to all of you wonderful amazing people,keep taking each day as it comes one step at a time .Sending you all the love possible via the net!!!(sorry Im a northerner and my favourite word is love(and hope)
Carrie-It really upsets me to read the difficulties you are having getting B home,....a certificate ???I think its shocking that so many obstacles are put in the person acting on behalf of their loved ones.We are desperate people acting in desperate times I think they need to see that you only want support...and him HOMEmake it crystal clear petal and dont take no for an answer. Are there any friends who know of a corgi reg fitter or ask for a manager at British gas to help.Hope you get this situation sorted I really feel for you .....sending you the love and strength to pull B back home to you as soon as possible xxxxxxxx
Jay-you are doing an amazing job supporting jon and the girls(sorry to hear about the guinea pig)Im glad to hear that youve got some support for yourself(sorry got my counselling head on)thinking of you all sending love and hugs xxx
Joan- Hope you are both having a fabulous Mistletoe experience!!xxxx
Izzy- Hope the scan went ok thinking of you both xxxxxxx
Greentree-Dad is looking at joing a trial in Glasgow at the Beatson Centre(i think a couple of other members are currently there Gayle) There are trials in London at the Royal Marsden and Surrey.There are more trials planned for later in the year(but Im afraid this is our only option as Dad has been given a couple of months.I can give you more information if you send a friends request I dont want to bore everyone.You do have to travel to the site and its normally weekly for the first 6-8 wks then once every 3-4 weeks.Its a huge 10hr return journey but having hope for a little longer is worth it (as long as Dad is fit to travel)Ive been told today that he may be able to claim some travel expenses???Good luck to youon your long journey,keep hopeful....its so frightening for us all but we know what you are going throughxxxxxx
pinklinzangel-Sending strength to you and your parents,my advise to you is get some counselling as soon as possible,go to your doctor and get referred,Im a Counsellor but Im struggling at the moment.....its so difficult to cope with supporting everyone else that you forget about yourself and dealing with a loved one who is treminally ill is soul destroying and makes us all very vulnerable to burnout!!! Keep posting this is a lovely group of people all coping at different stages of this bloomimg illness.
If ive missed anyone Diane love to you bothLesley hope your Dads recovering Emma hope all is well.xxxxxxx Debbie
carrie, you click on the person's profile ( where it says "view xxx's profile" at the end of the message they have written - a blue bar underneath should contain the prompt "request friend". if the profile is long you might have to scroll down for it. click on request friend and hey presto! the person receives a "request" message in their messages and has to accept the request before you can send private messages. if you'r stuck try it out on me!
Thanks Diane, I tried requesting you as a friends and I think it worked ( I am very happy to have you as a friend). I tried with Jay (Yellow Sunshine), but it wouldn't work. Could it be because she has chosen to hide her profile?
No joy with B coming home yet. I'm not up to sending one of my longwinded posts now, but I will catch up with you all soon. I have read your posts and am thinking of all of you lovely people and sending you huge hugs.
People amaze me too sometimes. B's friend who lives in New Zealand has been receiving the regular messages we send to keep our friends up to date with his progress. He is now preparing to fly over especially to see B.
hi Gayle, lovely to meet you today, and martin of course! hope you've got things finally sorted for hols - like lesley says it will all be worth it when you step on that plane. don't worry about missing the last TMZ, its all very arbitrary, who know if 6 helps more than 5! its just the way the original trial was set up. and it would be possible to go back to TMZ later if you had to. I think its far more important ot forget it and try to enjoy your holiday! Carrie, corgi certificate??? since when.......! I am amazed!
Joan, had a look at your pictures - what a talent you have. I especially love the greyhounds. the pictures are very striking, I'm so impressed! Hope you're having a relaxing time with the mistletoe! hi Lisa in Illinois -thank you for coming on and letting us know you've found the site supportive, its good to know. sorry to hear about your dad - he was brave to opt for no chemo or radiotherapy. I think we can all relate to the changes we see in those we love - my hubby was driving and working up to the day he was diagnosed, he never worked again and is now severly disabled. its heartbreaking. hi to all, reading and posting. ,take care Diane xx
carrie, it must be - i tried too but you don't get the request friend option. Jay, if you put just a few details in your profile ( it needn't be more than you have already posted) and make sure it can be viewed by others, then we think we can request you as a friend! oh well, some good has come from it as Carrie and I are now friends! Diane xx
To all the ladies at the Beatson....when do you attend ???spoke to Mhari today looks like we are seeing Dr j next Tuesday 9.30-12.30 fingers crossed got to sort out travel and hotels!!! Mum and Dad lovely the sunshine ...Dad hitting the vino big time....he really sad that he cant get around walk along the beach but hes got the sunshine and getting a tan on his lovely shiny head!! Night all Debbie
hi debbie, most of us go on Tuesdays as that's the chemo clinic day but becca, gayle and I were all there today so won't be next week. good luck - I'm sure you will get on well with Dr J. just a wee word of warning - did your dad have radiotherapy - only it makes the skin more sensitive to sunburn - he needs to cover up a little! sorry if you know this already! i believe there is a big hotel right next to the hospital, called the Jury's Pond hotel. I have no idea if its any good , or if its priceyor not but is within walking distance of the clinic. the hospital is just a few miles out of the city centre. if you need any more local info pls request me as friend and I'll do my best! I'm sure the glasgow tourist info place would be able to help with all your arrangements.
