We Talk Brain Tumours

Hi

TGTSE...... I think these may do for you Martyn...

The Gentleman That Speaks Enthusiastically!

Two Gin & Tonics Severved Energetically!!

Train Goes Through Service Entry!!!

Love PEABS XXX

Teach Grandma To Suck Eggs

XXXX

ooooooohhhhhhh!!!! I feel Stupid!!

PEABS XXX

Martyn - Debs is not out of the secondry school stage yet and I think "that acronym" may cause serious palpitations in one so young!

Peabs - thought your interpretations were great, esp the one about Gordon.

Well I am of to see the councillor tomorrow bright and early after dropping the urchins off, for my first visit after "assessment" - at which I was advised that I definatley needed them!

Jan is seeing the community nurse this afternoon as well - gee I hope it goes OK.

Otherwise all quiet here - except for the Birthday Preparations, of course. We have settled on a visit to the local pottery shop with food and additional entertainment added by Mum & Dad. Jan is off shopping for bits tomorrow with one of our school friends - think I had better help do the list tonight otherwise Jan will come home with the entire contents of tescos!  So many thanks to all of you who put forward suggestions, we have sort of pooled what we thought the best bits were.

Love to all - Robin

ps - smallest urchin lost first front tooth on Saturday; would you believe the tooth fairy left a £2 coin and forgot to take the tooth! Sometime even the simplest things seem like mountains.

Hi - or

TGTSE ....

Tempting Girls To Smile Effortlessly                                                                 Talking Goobledygood To Superior Experts                                                          Trying Gamefully To Seduce Everyone                                                                        Thank Goodness The Station's Ere (rubbish that one - sorry!)                              Try Guessing This Simple Equivalent                       

Debs, as CH says - he makes them up - but since we're struggling maybe he's got a mis-spelling in there somewhere - we need some clues!

Oooh, posts crossed - you gave in far too easily Martyn, bet you were rubbish to play i-spy with!!!!

Better than day time tele eh?

Quite like the old thread, which reminds me, where is it Thomas?

Robin,

£2  !!!!!!!  Can't you get a complete set of dentures for that?

MartynXXXX

Oh I like Robin..........unfortunately I am well out of secondary school and college phase - its just my 3 kids who are all aged between 11 and 15.

So are the acronyms to keep us brain tumour patients thinking???  Cos I am a true goldfish brain these days.

Survived the bloodtest, not the best but not the worst ever.....just got to wait and see what my platelet count is tomorrow.

Toodles for now.

Hello all, I have found you at last! I don’t like this new fangled website one bit but I see that I’m not alone in my opinion.  I hope everyone is as well as can be. Debs, I do love your idea of giving BT a name and I also loved the reference to “headcases.” I think I might borrow that one. CH, glad to see that Puppy seems to be thriving and keeping you busy. Mandy, I was sorry to see that Pete isn’t doing too well. The aspiration was a problem with my Dad too. After his stomach surgery, he never regained the ability to swallow (due in his case to the Parkinsons). He had lots of sessions with the Speech Therapists (they were called the SALT team) but despite all their efforts whenever they tried him with tiny amounts of soft food, the scan showed it was going into his lungs instead of his stomach and we were told that it was the aspiration that kept causing his repeated chest infections. Since they weren’t able to resolve the problem he had to be fed firstly via the Hickman line and then by a nasal tube. Although Dad’s appetite had been poor for some time before his final illness, he had developed a real sweet tooth and every time we went to see us he kept asking us for chocolate and grumbling about the fact that he hadn’t eaten anything for 9 weeks. It was hard seeing him like that. When someone has previously enjoyed their food, not being able to eat must be a real torment.

Talking of appetites, Paul’s appetite is HUGE at the moment, no doubt due to being back on the Dex although we are now in week 3 of dose reduction regime again. While we were away on holiday we both ate very well but Paul still seemed to be hungry most of the time. To be honest, I think he is rather greedy now but of course it’s just another side effect of the BT monster so I don’t have the heart to try to control what he eats even though I’m sure that the weight he has gained is not helping with his reduced mobility. I always thought I had a good appetite but there’s no way I could keep up with him now. As an example, this is what he ate one day while we were away; about an hour after our cooked breakfast in the hotel, we went to a harbour-side snack bar in Peel for a cup of tea and Paul amazed me by ordering a bacon and sausage bap as well. Not content with that at our next watering hole (we have to stop for a cup of tea on a regular basis when we are out for the day now as he gets very tired and can’t walk far without a rest) he spotted one of his favourite meals on the menu namely corned beef hash so polished off a big plate of that with baked beans. Later in the day he had a cake and liked the look of the Cornish pasties in the bakers so had one of those too. This was a night when we had booked to go out for an Italian meal and when we got to the restaurant, he had 2 starters plus garlic bread and then a pizza. I was dumbfounded!

We’ve had a lovely, relaxing week in the Isle of Man. We did the sad bit first and my beloved Dad and Mum’s ashes are together now in the gardens of the Villa Marina. Despite the sadness of the occasion we were still able to raise a smile, particularly when Paul devised a very ingenious way of sprinkling the ashes unobtrusively in a quiet, less cultivated area of the gardens! (Think of how the POW’s managed to dispose of the soil in The Great Escape and you get the general idea!) The weather was very kind to us, we went out every day and even though Paul isn’t really up to long walks now, it was lovely just to be away from it all and to be out in the fresh air. Bullseye loved it and even ventured into the sea!

So now it’s back to work and the usual routine. Getting used to life without my Mum at the end of the phone is going to take a very long time.

Love to everyone,

Susan

xxx

Well - I am not going to spoil any illusions!

Martyn - Very thin ice I feel !

Robin :)