We Talk Brain Tumours

Goodness, so much lovely banter mixed with so much sad news.

Robin sorry you've got the results you were so dreading - I really hope the neurologist has a plan that will work for all of you x

Y&Y - sorry too for your news - it's hard seeing them struggle so much - my P had four falls in less than two weeks and as he is paralysed down one side he fell like a ton of bricks onto that side, he was battered and bruised, as was his confidence - and getting him up each time was so hard - I'm not sure why but we don't call 999 although i know we can - however he hasn't fallen for the past 10 days.  Have you got any other appointments with anyone to discuss things through?  I know how dreadful I felt when they said they couldn't give any more treatment - I hope you have someone to talk things through with xx

I've just returned from taking my son to Aston Uni - so on the thread of St Nicholas and tulips did you know that Tmz was researched and discovered (is that the right word??) at Aston?  Strange that when they told us that I was all the more for Aston, just hits a chord doesn't it.

Hi to Suetoy - missed your posts - sorry things are as they are, life is just so hard isn't it?

Daisie, I hope things do improve - maybe a bit of sunshine will help brighten the day? Take care x

Turkishgirl - nice to read your posts and good to know you are coping as well as could be expected x

Hi to everyone else, I'm rather tired today - didn't sleep well at all last night as I kept waking up every hour - I think because they have admitted Peter into the hospice for observation and to alter his pain medication - I have mixed feelings but I have to say that today, at least, it meant I could go to Birmingham and not worry if he was ok with whoever I had to leave him with - I popped in for an hour on the way home and he was fine and really the best he's been in a while - I only hope tomorrow brings the same news - anyway I don't mean to miss anyone out but I really do need to sit and relax - the journey home from Birmingham was a nightmare so am both physically and mentally tired. 

Martyn and CH - xx 

Anyway you cheeky rascals - my 'treasure' is permanently under lock and key these days!!!

xxxxxxxxx

What a hard day with news today.
Y&Y I'm so sorry.
Suetoy, lovely to hear from you. Wishing you strength.
Hi Turkish girl.
And to everyone reading, Just hugs, big hugs. XX

Thanks for alll thoughts. Mandy no more appts. Mac team coming tomorrow I think. I will have help for lifting etc but will want to do personal care  myself. I just feel numb.Always call 999 I used to work on frontline ambulance so know that majority of our calls were picking people up who had fallen and carers couldnt get them up. Its not much about scraping bodies off the motorway. I feel tomorrow when I wake I will think its a dream. Sadly its not. I will spend the rest of our time cuddling. x x

Yin and Yang - not really spoken much before but my thoughts are with you both and I send you both the biggest hug I can. Mum had hospice community care team in daily and it really made life just a little easier for everyone.

CH - I think the train driver has a TCO tucked away somewhere as there is a lot of chocolate mess on the cabin door !!!!!!!!

This thread is back along the lines it used to be - supporting in its own unique way. It helped me so much along my journey and its good to see it back even though we have lost some passengers along the way at various stations....

Love and hugs to everyone at this difficult time of year for some of us.

Allison xx

Morning x

Y&Y, cuddling sounds lovely, my favourite since being a little girl, it conveys so much without having to say anything.  I'm sure the Mac team will be the support you may need, not only practically but emotionally too - hopefully they will be able to answer any questions you may have and help make your time together the best it can be.  You have been a wonderful support to your husband and remember you have both done all that you can do - how has your husband taken this news?  You know there is a time when we have to begin to understand their acceptance,or  not, and help them make this time right for them.  Take care our friend xx

Y&Y, it's the hardest thing, after fighting all the way to hear that there is nothing else to be done. Your whole being rejects that message.

My  partner had three episodes of regrowth, the first two we fought like hell with chemotherapy and an operation, but the third was just too overwhelmingly fast growth to do anything about.
Things changed literally every day. From the symptoms I knew that these were in another stadium from previous symptoms so was somehow able to accept and spend that time with him and caring for him. 
Those days are such important times and cuddling and talking are definitely foremost I think.
It's impossible to write this without crying. I send you so much strength.
Love, xx

Just logged on and seen such sad news - Y and Y - sending you both love and as much strength as you can muster - Noted Martin's advice - could that help? A second opinion re further treatment?  Thinking of you both and Suetoy and her man and dear Gayle and Martyn - and Robin and Jan - difficult news this week - Please accept my love and best wishes, all of you - Have I missed anyone ? Wishing you all so  much good xxxxxx

  Mandy - you dear trouper - hope P benefits from the stay at hospice and you really get some rest xxxxx

Hello all - Miggins -you never cease to amaze me with your strength and kind support  for all xxxxxx

Us - well David's still in hospital since second debulk on Nov 13th - physically ok , mentally very confused - I have no idea where we are on this journey .... I just know everywhere I look I see the sadness we all suffer 

 Dear all - keep strong in the love that shines through all this - Be thinking and praying for us all xxxx

Greyhound, Nice to see your post. It's really difficult that David has been in hospital so long. Is it far for you to travel? I hope you are OK, no doubt your children (and the Greyhound) help to keep the spirits up.

Keep your chin up

After I saw and responded to Greyhound, I read back through the previous 3 pages, which I had not seen before.  Not the best week for many of us!

We are thinking of you all.

Martyn, you need to keep on the case of those supplying the cheer you up refreshments.

Martin.

Thank you all for your kind words and thoughts. There really is no more treatment and we saw scan yesterday. It has really grown huge and into another lobe-the paratiel. I think we are into the caring and cuddling stage. Mark took news as well as poss. It was heartbreaking. We just cuddled and cried a bit in oncs office. He was lovely. I have done this already six years ago with my partner who I lost to prostrate cancer. It was different because by the time we knew it was too late he was not really with it. Just a week from being quite well to hospital on the Thurs and died Sunday so it was only me who knew how bad things were for which I was thankful. This is so much worse with Mark still being so aware. I dont know how you deal with news like that. Cuddled up by the fire now. Our bed is moved to the lounge. Love to all fighting x