We Talk Brain Tumours

JM7  ...That is wonderful news! Relax and enjoy. I am so happy for you both.

Cathix

JM7 isn't it the best news, even when it's living scan by scan, I always feel I can begin to breathe for a bit after news like that!  Long may it continue

The way I see things is that the whole purpose of this Macmillan site is to reach out to ANYONE affected by cancer.  There are no guidelines that it has to be patients & carers only, if you are affected or have been then you are welcome and surely that extends to any of the ongoing threads.

I find it a little sad when people leave, but there comes a time when visiting is either too painful or people feel they need to move on.  Let yourselves be the judge of that and until then, we are all the richer for having your experience and friendship amongst us.

Just my two pennies anyway.

Love & Strength to all on this journey

Thanks debs and cathi, for your kind words xx

Hi All

JM7 SO PLEASED FOR YOU ON YOUR NEWS XXXXX About time some good news here, xx

Stephen I think we are at the same stage!! Mum having fairly good day today apart from out of no where she shouts "ET go home",  and looked right at my sister who has come over from Australia!! and then denied all knowledge of it! Think she being a cheeky monkey now xx

Teen xx

Hi Mandy D. thanks for being so welcoming. I certainly feel an affinity with anyone dealing with BT, I think it's such a different way to die as the body doesn't quite shut down the same way as is often the case with other cancers. 

My friends mum could chat away to her the day before she died, my mum couldn't speak to me in sentences for the last few weeks, heart breaking. 

Didn't have time to read all the posts. I see there is some good news for JM7? is it? Nice to hear. 

x 

thanks everyone for your kind words, I hate this roller coaster.  Today nausea due to the chemo - first time since starting treatment that Paul has had this so difficult times, we also had optician in to test eye sight and retinopathy, oh yes of course new glasses required, district nurse, then physio followed by 4 calls from the phlebotomist as no one was sure when next bloods should be done or which tests, then a call from day hospice to see if I was Ok for them to take blood and should they do it weekly so that we can be sure it never gets forgotten, didnt have the heart to say not required for 4 weeks, finally OT and physio want a joint appt next week so all in all a busy day - tomorrow is massage day, for Paul not me, and I must remember to tape the Gold Cup.  Thanks goodness for diaries, memory is rubbish!

Wishing you all well

jms x

Hi All

Me again!, JMS why are you not having a massage too, you definately deserve one, hospice have arranged for mum and I to have one at my house together.

Not sure if any or you know about cancer lifeline, we have one here in the South West and it is a cancer charity to help anyone affected by the weed and they offer a 3 day residential break in Devon (lovely here) with food etc for 2 people be it the carer/relatives etc of someone affected by the weed, website not that good or could be me!! www.cancerlifeline-southwestltd.webs.com or phone 01392 432984, leave a message if Jane not there, (she has had skin cancer and I have known her for 15 years) maybe just abreak for you all, it is FREE just a refundable deposit and small groups of 12 people at one time.

Now my s**t news, dad has informed us he will be selling and going off once mum has gone, he thought he would go first due to his health (double by-pass, diabetic and disabled) and he cant imagine life without her, so he is going to sell the home, buy a motorhome and go!!! so I /we will be loosing two parents not one to this god forsaken weed. Think my heart broken forever now x

Teen x

That's fab news JM7 - long may it continue!

Debbie xxx

Teen,

That's so harsh to take, let's hope he is just saying it now and might change his mind once the actual situation arises. He's probably just panicking at the moment about the future. Try not to get yourself all upset, well, any more than you are already of course.

Thinking of you.

Debbie xxx

thanks Debs xx