Hi everyone,
Im brand new here. My adult son was diagnosed with stage 3 Mycosis fungiodes back in December last year and has been on a course of tablets. Our most recent appointment at guys showed lymph nodes inflamation.
ive been reading about his diagnosis and i just dont know what to feel - except guilty that i dont know what to feel, if that makes sense.
I dont know how to best support him ( im his emotional carer as he also lives with emotionally unstable personality disorder. he shuts himself away and doesnt communicate ( he also has attempted suicide twice before and been institutionalised for his own safety. he is 24.
im not sure what my question is here really. I feel overwhelmed and dont really know what to say, do etc.
any suggestions on how i can best support him ( and my partner whose wife passed away from cancer 10 years ago) would be really appreciated.
thank you
Hi LibraryLil I don’t normally post in this group as I am the one with cancer but I just happened to see your post.
I was diagnosed with Mycosis Fungoids (MF) way back in 1999 at 43. MF is a very rare, incurable but treatable type of Low-grade non-Hodgkin lymphoma and I eventually reached Stage 4a in late 2013 so I do appreciate the challenges of this journey very well.
You may want to join our dedicated T-cell lymphomas support group (MF is a type of T-Cell Lymphoma) where you will connect with others like myself who are living with the co fit ion or supporting family on their journey.
Living with and being treated for MF is rather a unique journey.
I will keep an eye open for you ((hugs))
