I was diagnosed 1 month ago, and after further procedures and tests, im still waiting to hear the next step. Its constant limbo. I do not know how i feel or what to think
Limbo land is one of the worst places to be Chaz.
Can u contact your consultant's secretary or cancer nurse specialist to find out what's going on, or have you not seen either yet?
In that case, maybe your GP can chase things for you?
It's worth asking the helpline on 0808 808 0000 or "Ask a nurse" online for their advice too.
Sounds trite, but try n find something to distract you, otherwise it'll play on your mind all the time. I know, I've been living with cancer 14+ years n I tend now to only think of it when my scan results are due. Otherwise, I'd have driven myself bonkers by now !!
Thank you. I've contacted both those, no more info until MDT which was supposed to be 2 weeks ago.
I'm still working which is a focus, but its the quiet times i struggle with....over thinker!
14 years though....you must be a strong old nut.x
Love the idea of being "a strong old nut" lol. I'm certainly a stubborn one!. I'm an over thinker too, luckily I'm also an avid reader n can escape into a book.
Have a look at the thread "Anxiety buster," started by Ethelmay ,might give you some ideas.
Btw, have u joined the group for your cancer type? You'll then b in touch with ppl whose experience is similar to yours. You could also add a bit to your profile once you know a bit more.
How do i join a group for my cancer type?
Am now awake n about to feed my brain lol
Might even have two Weetabix haha.
I see you did it while I slept, Sorry I didn't get back to you, fell asleep, only up earlier for a brief visit to loo. ..
Hi There Chaz,Ive just joned this group so not sure what Im doing at the moment,but I seen your post and Im exactly the same.I was diagnosed 3 weeks ago.My consultant told me to go on holiday next day and when I get back everything would be full steam ahead ..firstly a MRI Scan which I had the day after getting home...but Ive heard nothing since.Ive phoned and was told average time for a radiographer to go over the scan is between 2/4 weeks .So like you Im in limbo too. Hope all is ok with you at the moment.x
Why these ppl don't realise what waiting for scan results is like is beyond me.
OK, mini rant over!
Again, the best thing is to distract yourself. Easier said than done I know. I've been doing it while waiting for the past 14 years! Luckily, I can lose myself in a book...
At least u 2 can compare notes n support each other
Btw, I've changed my user name ( was flOralW0man in case you're wondering Chaz)
I think it's the not knowing what's about to happen .I read so much stuff online Ifeel like running away but this rotten cancer would just follow me.Sorry for gloomy mood.zBsd night tonight scary thoughts
Reading stuff online's a no-no really, unless it's a reputable website like Macmillan, CRUK or one dedicated to your specific cancer, eg Kidney cancer UK.
A bad night makes everything seem worse too doesn't it? Have u got support at home lindala?
Reading stuff online's a no- no really- unless it's a reputable website, eg Macmillan, CRUK or one specific to your cancer, eg Kidney cancer UK.
Bad night doesn't help either, does it either?
U have my sympathies.As I say in my signature, once u know what you're dealing with, then u can cope with it.
.Sorry ,didn't think my post had taken, so typed it all out again lol x
lindala, u mght think of joining a group for your cancer type like chaz81has done. There you can get support from ppl who've had a similar experience to yourself n know where you're coming from.
Thank you x I shall do that
I dont seem to be doing very well finding my way round here Oh Dear!!!!Looking for people diagnosed with bowel cancer to chat with Can you point me in the right direction please ..thank you in advance
Go to Groups" then to Bowel cancer" (under "Cancer types") and click "join"
Come back to me if that doesn't work x
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