I'm feeling overwhelmed. I guess that's normal after a diagnosis. Still have some results to come but I know I'm having surgery in a couple of weeks. I guess I'm pretty scared too. Not for me but for my family. They look so sad right now. I hate that I've done that to them. They're trying so hard to be positive but I know they're really worried too. So tired all the time agh!! Had to stop HRT because of the surgery which means night sweats again. Oh my, so much worse than the actual menopause, really keeping me awake at night which gives me lots of extra time to worry!! Being tired makes me so tearful too. Hating night times right now. Any tips on getting enough sleep?
U can get cool pads u put in your pillow case so you're not constantly turning over the pillow, trying to get a cool bit.
There are also various complementary therapies instead of HRT, but I'm not allowed to mention them lol.
Good luck re surgery x
Thank you! Still don't have a date but should be in a couple of weeks. How are u?
My CT scan results weren't brilliant - my cancer tends to pop up somewhere else every 2 .5 to 3 years n it's done just than. But I'm still to b monitored every 3 months, as usual. So if the docs aren't concerned then I shouldn't be either.
Have u still not got an op date yet? Hope it won't be long now
Oh no! Poor you. I'm sorry things aren't great for you right now. By 'monitoring' do you mean you'll be getting more scans, blood tests etc? What then?
I've still got no op date hopefully going to hear this week. I'm getting pretty fed up now. Feeling very heavy, uncomfortable, not sleeping well and a few new symptoms too. I keep crying!! Feeling a but unloved too. Some friends and family are being quite weird, absent really. Thank goodness for my lovely husband.
They'll do a CT and MRI scan every 3 months, as usual. No meds for now, maybe in a year or 2' s time if things continue to grow. They keep a very close eye on me and will increase frequency of scans if they think it's necessary. Should I need meds in future, there's about 4 they can use.
Sorry to hear you're feeling a bit unloved n that some family n friends are being absent. It may be their way of coping but doesn't help u does it?
As u say, " thank goodness for my lovely husband"
I've got one of those too.
Do post when u get your op date. Thinking of u n sending big hugs x
So, my op is in a week and a half. Got a copy of the anaesthetist's report in the post this morning. All good, but makes it all sound very scary, so feeling a bit overwhelmed again. I have finally managed to get hubby to go out for the afternoon without me!! He hasn't left me alone for weeks, bless him! So I managed to write him and our daughter a letter each which I will leave with my friend. I guess I just needed to write a few things down for them to read in the future, just incase the worst happens during the op. I'm really not worried for myself, but I hate thinking about them being sad without me. Writing the letters seems a bit defeatist I suppose, but I feel now that I've finally finished them, that it's a positive thing, taking back a bit of control. I am of course hoping and reassured that the op will be fine. I will be out of that hospital in record time!! I got a good bit of advice from a lovely outreach macmillan nurse yesterday. She told me that when worries about the op, future etc get too much, to just stop and get through the next little chunk of time such as today, this morning or even the next hour or so, just concentrating on making now as good as it can be, because the op isn't now, this afternoon etc. So what's the point of spoiling now with worrying? She's so right. I know I wont stop worrying, but I am going to take things in smaller chunks and do some fun stuff before next week! Hope this can help someone else.
Good luck for your op x
Thank you. Should have had my op on Tuesday but it got cancelled. 'Drained' isn't the word!
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