Diagnosed at a young age

If you're diagnosed with cancer at a young age, you might have very specific concerns as to its impact - this group's a space for those diagnosed at a young age to share and talk about their experiences with others of a similar age.

Welcome to 'Diagnosed at a young age'...

Jimmy - Macmillan
Posted by

Hi all,

I’m Jimmy from the Online Community team, and I wanted to post here this evening to introduce you all to our revamped ‘Diagnosed at a young age’ group, previously known as ’16-24 and living with cancer’.

Being diagnosed with cancer at a young age often means you’ll face challenges that differ to those who sit under an older age bracket; you might feel it has a significant impact of your education, your career, dating and perhaps starting a family - to give but a few examples.

This group’s a place for young people diagnosed with cancer to talk through these specific concerns, and share their experiences with others of a similar age, facing or having faced the same challenges.

If you see a member on the site who you think might benefit from joining the group, give them a ‘nudge’ in this direction.

Thanks all,

Jimmy

Online Community Team

Ginajsy
Posted by

Thanks again for this group Jimmy. Whilst it was named 16 - 24, I am reliably assured that us 30s and 40s age range would also fit here too. 

I would like to see people coming across to chat about things that they may find bad or even good about being diagnosed at a younger age to the normal.

I have a few things to kick it off.

I am ashamed to admit whilst going through my anger phase after diagnosis that I resented being diagnosed at my age and felt if I were the 'normal' age I would have done all the things in life I wanted to. Though having gone a long further since then, I have realised no matter the age we feel that we have so much more we all want to do and we all just want to keep going.

My other thing I have found, I was very open about my diagnosis. You get the well meaning friends, the friends that slope off in to the background.... but has anybody else found that they have been the 'trophy cancer friend' as I call it. As in people you knew but weren't close to latched on and were super supportive... for a while..... until the novelty wore off?

Anyway any other thoughts please throw them into the pot.

Gina

There are no perfect people, only perfect intentions

♬I should've been more than this, I was gonna be something big, But I never did anything at all ♬ Dan Owen - Icarus
GBear
Posted by

This is a great for us who don't really feel they fit in. When I was diagnosed with womb cancer just before my 38th birthday I felt odd that others in the group were much older and although I fit in the 1% of all those diagnosed are in my age group it makes it feel worse. Since then I have met many others in the group who are younger and I think having this group is great.  My mine anger issues was not having children although for a long time I wasn't interested in having children it was my choice, but having that choice taken has its own issues, plus feeling like you have let my parents down not giving then grandchildren, has its own demons . I was angry at myself and the world I kept thinking how? Why?

i had a similar experience Gina that I couldn’t believe i had cancer where i did at such a young age it’s rare is what I kept being told, although I believe now that there is alot of younger women getting womb cancer so its worrying, but I know when i was diagnosed i felt, unsure of what the future holds its a normal process but difficult.

  GBear Xxxx 

What is a Community Champion?    Womb cancer forum  

Call the helpline for free on 08088080000, 8am to 8pm everyday.

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beanpug85
Posted by

Hi Jimmy,

Is this group still specifically for those aged 26-24? I was diagnosed last year aged 32 and feel like I'm youngish for a cancer patient! Not sure if I should be here or if you could suggest a different group?

Helen 

Ginajsy
Posted by

Hey Helen

Jimmy will answer Monday too no doubt but no there is no cut off at 24 anymore for this group. I'm middling 30 and here  I think the 40s in time might join if they feel like they want to. 

Feel free to join in and get comfy in here  I've got the chocolate digestives ready.

Gina

There are no perfect people, only perfect intentions

♬I should've been more than this, I was gonna be something big, But I never did anything at all ♬ Dan Owen - Icarus
nickfreckle
Posted by

Hi,

Someone in their 40's checking in. 44, and recently diagnosed with High Grade, Stage 3 Bladder Cancer (Average age of BC diagnosis is 73), so on that basis, I'm diagnosed at a young age! 

Have started chemo after having 6 tumours removed, and hopefully then radiotherapy so I keep my bladder.

Pass the digestives! 

Josie47
Posted by

Hi, slightly older at 47 but young in the head and ‘too young for lung cancer’ apparently after two diagnosis of pneumonia!

stage 3 nsclc - treatment plan still undecided. I want surgery they want trials. Chemo starts Tuesday - chat with surgeon Monday! What an unwanted journey! Much love x

josie47 
Ginajsy
Posted by

Hi Nick

Lovely to see you join us. I do hope that they can save your bladder for you.

Now you know how Joey from friends doesn't share food.... well call me Joey

Hello Josie and welcome too

I am a fellow lungy.  I was diagnosed too as too your for lung cancer as well. They do seem to all get excited when they see me. I was 34 when I was diagnosed last year at stage 3b NSCLC. I will be rocking my 36th birthday in July.

I hope the treatment plan goes well and so does the chat with the surgeon. I had chemoradiotherapy, so any questions just shout. I am usually found in the lung group, but will frequent here now too

Gina

There are no perfect people, only perfect intentions

♬I should've been more than this, I was gonna be something big, But I never did anything at all ♬ Dan Owen - Icarus
nickfreckle
Posted by

Josie,

nice to meet you, in better circumstances would have been preferable though! I wish you all the best.

Gina,

I've bought myself a packet of squashed fly biscuits, or Garibaldi as others call them. So you can keep your digestives 

Likewise, I wish you all the best too. Let the battle commence! Chaaaarge! 

Jimmy - Macmillan
Posted by

Hi Helen,

Welcome to the group - I'm first off so sorry to learn about your cancer diagnosis, but really glad to see you've found our Online Community.

32's absolutely a young age to be diagnosed with cancer, so please go ahead and use this group talk through and share your experiences. Myself and the team opted to get rid of the previous 16 to 24 age bracket, as people in their 30's and 40's still face challenges that differ to those perhaps older than themselves.

I hope you find the group to be a really supportive place, Helen, but you can always email myself and the team at community@macmillan.org.uk if there's ever anything you need further support with.

Take care,

Jimmy

Online Community Team