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I'm afraid my husband hasn't had this type of chemo so I can't help you with this but maybe you could try posting in the peritoneal cancer group as there may be other members there who have had the same combination of chemo?
I really hope your first session goes okay. The oncology nurses should explain everything to you and outline all the possible side effects and give you meds to help with possible nausea etc. My husband has had several differenet combinations of chemo now and, although there are some days when he does feel pretty rough the side effects have been managed pretty well.
Always tell the oncology staff of any concerns or side effects you have had - it helps them give you the right stuff to manage them.
Sorry I can't help but I hope you get some answers in the other group or someone else who has had the same treatment sees your post.
Sorry you haven't had a reply yet but this group doesn't get many visitors. It might be useful for you to join the Peritoneal Cancer and/or Unknown Primary groups so you can meet people in a similar situation to yours.
I didn't have the same chemo combination as you're going to have but I did have a platinum-based one, Cisplatin. My reaction to that wasn't pleasant - vomiting for a couple of days despite the anti-sickness drugs they gave me, nausea and loss of appetite. I also developed mouth ulcers and oral thrush, for which they gave me meds that actually worked!
I do know that this website has detailed information about all the cancer drugs - in fact my oncologist printed out the relevant pages for me before I started my chemo. If you click on the Cancer Information heading in the banner near the top of this page, you should be able to find what you need to know from there on.
On the practical side, take something to read and/or listen to because having chemo is boring! You may be able to lie on a bed, so you could have a nap to pass the time, but mostly, people are sat in an armchair, hooked up to an intravenous drip. This will be attached to a trolley so you take the whole lot with you when you need the loo! So a word of advice - wear loose trousers or jogging bottoms otherwise you may find things a bit tricky.
I do hope this helps a bit, but do come back whenever you want to. It would be good to hear how it went. Best of luck for tomorrow.
Love & hugs,
I have had and am continuing to have these chemotherapy drugs. I got all sorts of side effects with the first round. The first cycle of the first round hit me worst. I was very sick and not too good with it. It zapped all my energy, I had mouth ulcers, tingly fingers and toes, and was good for nothing for about 2 and a half weeks and just when I started to feel normal it was only 3 days before I had to go again but it worked , and like I said the first one, for me anyway, was the worst. But it does effect everyone differently. I am now on my second round of it and have developed an allergic reaction to carboplatin. But this second round wasn't as bad as the first round and I haven't been sick. It's all very much trial and error, if you get a side effect no matter how small or how long it effects you for, tell them! You do not have to suffer. For every side effect they have a pill to combat it to make your life as normal as possible while having it. I was silly I never told them quite how bad I felt, thought it was normal and that there was nothing they could do. I am also having chemo on Monday, my 3rd cycle of my 2nd round and am panicking after the last one with the reaction, but they have given me a load of pills to take today to try to combat that. Good luck and let me know how you get on.
How are you? I've been thinking of you and hoping that you're OK. Sent you a personal message yesterday and hope you got it.
Hi am just halfway thru 4 cycles of this following endometrial cancer which was dealt with by a radical hysterectomy last December.I was really nervous about the chemo but it was actually not as bad as I thought. The nurses in the chemo unit explained everything they were doing and answered all my questions. Mine takes over 4 hours to run through but they gave me a large dose of antihistamine first to prevent allergic reactions and that made me quite sleepy. I haven't felt sick just three days after the chemo my legs felt like I had run a marathon this lasted for about four days. The only other issue is the steroids they give you to prevent sickness give you constipation so be prepared! Finally I hope you know about losing your hair mine started falling out exactly two weeks after my first chemo and had all gone after 4 days. This is what has upset me the most which silly really but I recommend a website called annabandana as they have great range of bandanas and scarves and hats. I have quite a selecthrough and have not actually worn my wig yet.
I hope all goes well for you try and stay positive we will get through this!
Hi lis. just joined this group and saw your post, you sound like a positive person so hoped you would share your experiences with me as you have gone before me,so to speak!
I am starting chemo (paclitaxel,carboplatin) on 15th May. I had endometrial cancer may 2009 had radical hysterectomy.3 years later the cancer recurred top of vagina. 2012 had pelvic radiotherapy and 2 brachytherapies which failed. since then more nodules have grown in the same place and now I have a secondary in my left lung. They tell me they are aiming to cure the lung and tp shrink the others with a view to surgery. however, my immediate concern is the treatment and findinding helpful tips on how to alleviate side effects should they occur, cheers lis. i do hope this post finds you well. Nita. x
Hope you are well and thanks for posting on this website. I've just joined and am starting my chemo on 15th of May..........all information from you and others is most welcome and re-assuring. thanks a million everyone!!. keep smiling. nita.xxxx
Thanks so much for posting some details about this treatment, its funny how knowing what might come helps in coping. Just thinking about you all and sending loads of love and good wishes. roll on the 15th when I can get the first dose over and then its just 5 more to go and counting!!
will be posting you all about how I am getting on. keep in touch and keep smiling,xxxxxx Nita
I'm at the Christie too!! I have'nt received a firm appointment for the chemo yet but Prof. Jayson said thurs or friday of next week. I am going for my kidney function test on monday morning (12th) so I hope to start the treatment that same week?
what do you think.....does it take longer for the kidney results to be examined. I'm thinking I might have to wait until the following week although I got the impression Prof wanted treatment asap. xx
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