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Chemotherapy

A support group for everything about chemotherapy, being treated and side effects. Tell others about your experiences and get answers to your questions.

Painful scalp

OscarTheCatgotmehere

Unusual times I suppose.I'm having Herceptin biosimilar and perjeta on friday.

   Hope mum has recovered and your treatment goes well

  Y

VelvetMouse
Posted by

Hello NELL! 

I did wonder about "Neil" being very worried about the hair/ scalp. :) 

My husband's isolating with me too - he's working from home. I think we are all beginning to realise that the CV is real. So scarily real. 

Interesting - my side effects for plaxitaxel and carbo platin (think that's right...how easily these names and medical terms trip off our tongues!) are similar to yours. My bad days are a few days after the chemo, 1st week. And aches and pains, with some nausea thrown in that mild. 

I'm going in for my Radiotherapy meeting tomorrow, and my last chemo is in 2 weeks, Not keen on being in crowded rooms at the moment. Not much of a choice though. 


Hope your clinic and chemo go well. And there won't be the usual crowded spaces.

Please - if you can - let me know if they are doing the distancing thing for patients coming in...last month the crowd freaked me out. Best wishes

VM

Nell Beancounter

Hi VM,

Clinic extremely quiet, only 2 or 3 people there! They are only seeing people in active treatment who need blood tests etc and doing phone consultations for others. Good to go for chemo on Friday but my surgery is being postponed until after the last chemo rather than this one (the third) as they can’t guarantee an ICU bed in case of complications. Really down about that but I will still have CT scan next week to check that chemo is being effective. Hope that isn’t busy either.

Best wishes, Nell x

OscarTheCatgotmehere

Hello All,

     Just had my chemo early due to cancellation.There are no visitors,the spacing is great in waiting areas and I felt very safe.

     Had llong shower when I came home,stripped off outside with clothes going into hot wash

Nell Beancounter

That’s really good - hopefully side effects will be minimal.

Best wishes, Nell x

VelvetMouse
Posted by

Hey OTC

Thanks for updating us. Glad the chemo went well and good to know that there is space and there are no visitors. Feels much safer. I hope you are feeling ok and side effects are not too bad. 

Scary times for us all...especially while on chemo. Often feel freaked out and stressed that cannot go outside for a walk! 

Take care
VM

VelvetMouse
Posted by

Hi Nell,

Sorry to hear about the chemo being postponed...what a situation with CV. Unnerving actually when you know that they are putting us down the list. I can imagine you are feeling rubbish - I would have felt gutted. Doesn't even seem quite right actually. 

Let us know how the scan went - really praying that it will go well for you. Cancer these days is manageable, if not altogether banished, and so many I know tell me that one can live to old age with it. There was a lady in last time I was in for chemo - she had been coming in for the pat 17 years off and on! Made me realise that this is perhaps like a lot of other "conditions" that have to be treated from time to time. 

Take care of yourself. 
VM

OscarTheCatgotmehere

Hi all,

 Had my lumpectomy friday,all went well,hospital has been set up for Covid.Recovery rooms converted to ICU s Additional safety procedure in op room before I had it.Safety equipment worn by all staff doing pre op procedures.Escorted from one department to the next.Fantastic team.

Still got to go in for injections and picc cleans

Staff stood down from 12 hr shifts etc as peak has not arrived.Let's hope lockdown is working

Yx

VelvetMouse
Posted by

Hello Y,

So glad to hear that. Sounds like it was done to a high standard of care. So good to hear.

Hope you are feeling ok today. You could check if a district nurse can come in for picc cleans and injections - unless they are chemo injections. I have the district nurse coming once a week to clean picc line - though I am not sure which is worse...having them come in, or us go out. 

Wishing you are good recovery
VM