Husband has 6 to 8 weeks left

I'm so sorry to read this, but we have been in a similar situation.  My husband, with terminal cancer, was discharged from hospital after being admitted as an emergency 2 weeks ago after urosepsis. When he got home I asked the GP to visit and also asked if she could chase the palliative care team, who we had been referred to, but who had not contacted us, I also asked the community nurses to chase them.  (I took the delay as a sign that they are really busy and there are a lot of people in our position sadly) Anyway following that they did contact us and following their visit last Friday we now have the support that was promised.  From Monday we have had hospice at home nurses visiting 3 times a day, District Nurses visit 3 times a week, but have upped it over the past couple of days.  I have a telephone number I can contact at any time of the day or night and if needed the nurses will come out - no matter what time it is. It took a while to get here, but now we have the support I feel so much stronger.  My advice is shout from the roof tops - it's sad to say but those that shout loudest get heard.  The support is out there and you need it now, but you might have to fight for it.  Badger your GP, chase up any services you have had contact with and update them.  You don't have to do this alone.

And I so wholeheartly agree about our life being taken away - we had such plans and this wasn't one of them. 

Take care and I really hope you get the support you so badly need.

XXX

Thank you so much for your response. Hopefully he is coming home tomorrow and I have been promised support but I will take your advice and make sure it happens. I wish you both comfort and peace of mind during your difficult time. I know the peaceful times for my husband and I when we are alone together help us cope with the day to day emotions of everyone else. Once thank you. 

That's good news. I'm sure he'll be happier at home, I know we are, and my husband has expressed a wish not to go back into hospital and to be treated at home no matter what and that has been written into his plan. 

He spends most of the time asleep now, he's not really eating anything at all now - but still managing to drink a little. 

Our youngest grandson visits with our daughter and he really bucks up, it's lovely to see, and at two & half he's not fazed by Pop being in bed, he just takes it in his stride bless him. 

Next April we will have been married for 45 years, we met when I was 17. 

I really hope you can make the most of the time you have together. 

Take care of yourself too. XX