Hi
My wife is 29 Years of age and has been diagnosed with Sarcoma Cancer - Rhabdomyosarcoma
The Cancer starts in her nose and spread to her neck - We have traces in her spine - But these showed on the MRI and not on the PET... lord knows if thats a good thing or not at the moment... She started a intense chemo just over a month ago and we have had 2 x residential visits with one more to come before the retest....
Were both strong and in a good frame of mind and taking each day as it comes - but after nothing like this in the family ever this is a whole new eye opening experience ... - now I have that off my chest - my question mainly is the side effect she is proper struggling with the most is an extremely sore tong - any suggestions to help this...
We have tried -
* A prescribed Mouthwash which tastes awful!
* Ice lollies and ices cream - This is favorite so far!
* Cucumber! - temp does the trick
Any other suggestions - Grateful!!!
ALSO - anyone else feel they will wake up one day and this all be a frigging nightmare!!!!
Hi and welcome to the community though sorry to hear about your wife. As you probably know sarcoma is one of the rarer forms of cancer you can see a lot about if here and also on the sarcoma uk website, as well as in our Soft tissue sarcomas forum - my wife has Leiomyosarcoma so similar but different.
When my wife was ill she got through a lot of ice, on the flavour front people also try ginger sweets.
Dealing with your emotions can also be quite tricky, I did a livin with less stress course that really helped me.
<<hugs>>
Steve
