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Just been told my dad's drugs not working been offered new ones cabozantinib or nivolumab wonderd if anyone has experience with these
Hi Gordon.b, I’m sorry to hear your dad’s drugs are not working, it’s always a worry when you have to change treatment. My cancer is different it’s metastatic melanoma, so I haven’t heard of of cabozantinib I found this link for you though on Macmillan https://www.macmillan.org.uk/information-and-support/treating/targeted-biological-therapies/find-your-therapy/cabozantinib.html
I am on the Immunotherapy drug Pembrolizumab which is like Nivolumab but by a different company I am on my 35th 3 weekly dose and have had minimal side effects (just a rash 2 weeks after my first dose and I feel tired for a few days after each iv treatment) but everyone is different in how they react side effect wise and how they respond I’m very lucky I currently clear.
I found this link for you
I saw that this was your first post and that you haven’t joined any groups, I wondered if you might have a more relevant response if you posted in the kidney group I’ve put a link for you to click on. I had a quick look there’s a lot of chatter about Nivolumab in there. you could search for the drug names in the search bar of the kidney group and join in any recent discussions or start a new one. If you click join the group you can also be notified if there are new discussions.
i hope some of this helps, but I hope someone gives you some personal kidney cancer experience.
What is a Community Champion?
You can call the Macmillan Support Line on 0808 808 0000 (7 days a week, 8am-8pm) or contact them by email.
Thanks will have a look
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