Breast cancer for the under-50s

Breast cancer is far less common in the under-50s, but this can leave younger people with a diagnosis feeling isolated. This group is a place for them to come together, share experiences and support each other.

Onco dx results in

lady_tinkerbell
Posted by

Hi lovelies had my onco dx results yesterday. Scored 11 so no chemo or radiotherapy! Got my prescription for tamoxifen today. 

I feel strange. Grateful happy and all those emotions. But also lonely. As if my safety net has got. I don’t know what to do. I feel I should return to work tomorrow and resume normal life. But I feel like “ has this actually just happened to me?”

Tinker bell xx
Sukki17
Posted by

Dear Tinkerbell, 

That is fabulous news!  Phew, you can start to look onwards and upwards.  Do you absolutely   have to go back to work straight away?  Like you, I felt very odd after my onco dx resutls  ( I did not need chemo either, which came as a massive suprise )  I very nearly went straight back to work, but I am SO glad I did not.  I had a few weeks just looking after ME.  It is a hell of a roller-coaster/shock thing, that youve been through.  I would strongly advice, that if you could just give yourself  a bit of time to recover it will be better for you in the long run.  

Have a happy day!

Sukki xxx

Netty113
Posted by

Hi Tinkerbell, 

absolutely fantastic news I am over the moon for you. Do you need Rads like me ? 

I am so pleased. Give yourself a chance to rest and then go back.

 I am so pleased for you. I know how you feel I was in the same place s few weeks back. All ok with me getting through my Rads and very sore and pink but soon I will have my new normal life again. 

Lots of love Netty xx

lady_tinkerbell
Posted by

Hi netty 

no I don’t need radiotherapy. I’m starting to wonder why though?? I understand the dx results showed no benefit for chemotherapy but how do they access radiotherapy?  I feel I have more questions. I keep worrying that there is cancer somewhere else. I had no scans or other tests. 

No mention of prosthetic I still have the softie which is nothing like my size so looks silly. I wanted to do a few courses at the hospital like moving on etc. Nothing. Feel I’m cast aside now. 

Xx

Tinker bell xx
Netty113
Posted by

Hi Tinkerbell, 

Rosies123 didn’t need Radiotherapy either because she had a mastectomy so I am not sure if that’s what they do but I had a lumpectomy so maybe that is why I am having Radiotherapy.  Please call your breast care nurses who should be able to answer these questions. If you go to your GP they will be able to refer you for counselling or Macmillan have counsellor too.  Have a look on this Macmillan site as I did see a course called hope and it’s about moving on. I was considering it but it seems to be a 6 week commitment and I cannot do that as want to return back to work soon. Xx

Netty113
Posted by

Me again as I just looked it up. It’s called the hope programme and you can find it under the coping section of the Macmillan site. Have a look it might help. 

Lots of love Netty xxxx

lady_tinkerbell
Posted by

Thanks lovely. I’m calling nurse in the morning. I went out for first time sat night with very good friends. I cried before I went as couldn’t wear anything. When I was out all I saw were women with boobs everywhere. I feel so shit 

xxx

Tinker bell xx
Netty113
Posted by

Aww bless you. It’s a long journey hun  and you do look at people with normal bodies and think what happened to me, but they too maybe hiding sorrow as you never know what happens behind closed doors. I am so paranoid too  as I have one big and one smaller boob now and I am definitely going to get the other one done to match.

Remember we are survivors and it’s ok to cry as it helps us come to terms with what has happened.  Look at me the other day had a bit of counselling and I was a tearful wreck afterwards like someone had unlocked my heart and my head where I was storing my feelings and thoughts.

Those women with boobs could be in our boat one day you never know what life has in store for you so be kind to you and tell you how amazing you are, how beautiful you are inside and out because you are and  are a very strong lady and you are not going to let cancer ruin you. 

Much love to you and come on wipe those tears and I am giving you a hug but from my good side as the other side is sore and very warm!!

Lots of love Netty xxxxx

LS1
Posted by

Hi

Wanted to try to help re the courses you mentioned - have you contacted your local cancer support charity? My local one offers coffee mornings, mindfulness classes, counselling etc.