I am new to the site and I am just looking for any advice or personal experience.
I have suspected Paget’s disease which may or may not indicate cancer. This was first suspected by a junior member at my GP however, senior members at the practice state that I am too young to have anything of the sort.
This has been a persistent problem for me for over a year and I am struggling to get any kind of referral despite having an extensive family history of breast cancer. I am in a great deal of pain which affects me daily.
I am wondering if anybody has any experience of younger girls having this disease or if it is even worth continuing to seek a specialist opinion?
apologies in advance if this is not suitable for this forum.
Hello C11 first let me welcome you to the community no one wants to be a member of, but it is the best community for support and advice.
I have no experience of Paget's disease but i would say you need to keep on at this. Even if it is just to give you a piece of mind.
Is there any chance you can get an appointment with the junior member again and ask them to refer you to the breast care clinic??
If not i'm wondering if you can self refer and ask for an appointment at your breast care clinic yourself.
Unfortunately a few of us know that you don't have to be over 50 to get breast cancer, have you rung and spoke to Macmillan? they may be able to give you some advice to get this looked at.
You can contact Macmillan 7 days a week from 8am - 8pm 0808 808 00 00
Something else you could try is posting in the Main Breast Care Group there are more people in there who will respond to your question.
PS No apologies ever needed, were here to help xx
It's gonna make us who we are, it's written in the scars "The Script"
excellent advice from TheScriptFan
I had breast cancer that was only diagnosed post surgery and I'd opted for a full mastectomy rather than a nipple sparing one because of a slight twinge between my nipple and my arm pit.
it turned out I had Paget's of the nipple so just as well I sacrificed it, none of the medical staff had raised it as an issue, I'd never heard of it.
nobody is too young, the GPs are sticking their head in the sand and you need to drag them into the real world.
Cancer is always more treatable and curable if caught early.
Get the young guns to refer you, if nothing else for peace of mind.
real life success stories to remind you that people do survive breast cancer
Dr Peter Harvey
a lot of people believe cancer is not painful
I can tell you it jolly well can be.
I was was diagnosed with Paget’s disease at 41. I noticed a really small red line around half of my nipple and it looked a bit flat. My GP said that he wasn’t worried at all, but would refer me because they refer on all changes.
At the breast clinic, the surgeon examined me and said that she couldn’t find anything obvious, but I should have a mammogram to check. That’s when they found the small lump (11mm). The biopsies of the lump and nipple both came back as cancerous, but I still had breast conservation surgery as they were close together.
I don’t mean to worry you as I’m sure more often than not, rashes are harmless, but if it is causing you distress, then I’d be tempted to either go back to the GP or depending on your finances, you could go to a private hospital.
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