Family and friends

If a member of your family or a friend, or someone else you know is living with cancer, this group is the place to share your feelings and get support.

My dads treatment for his brain tumours are no longer working and I don’t even know where to start??

Posted by

I don’t really know how this works but I’ll lay it all out and see what comes of it.... my dad was diagnosed with a grade 4 brain tumour and told he had 6-12 forward 3 years and we found out he has another only this time he’s too poorly to biopsy or remove so he’s had constant chemo and radiotherapy for 6 wks but his symptoms progressed and today we got the expected but still shocking news nothing is working and they don’t expect more than 2 months from him. The doctor even said he’d be surprised if he made it to his next appointment in 4 weeks. 
He lives with my mum who is technically his carer but as he’s over 6 foot and lost all capabilities and she is just 5 foot and suffers with M&S and other ailments so very frail you can imagine the position they’re in. 
the doctor at The Christie said he should be moved into a hospice but we don’t have any clue where to start, who does what, what the rules are, how long does he go for and so many other things. Any advice would be greatly appreciated! xx 

Posted by

I'm so sorry Reilly, I really am. It must be just the most unbelievably difficult and devastating time for you all. 

I've been told that when we get to hospice stage with mum, it's the GP that should sort the referral out so I'd speak to them first. 

Wishing you and your family strength x  

Posted by

Hi Reilly, 

I am the exact same as you. My dad also has a brain tumour and has been taken off of treatment as it isn’t working. What is it your family are doing now? My dad wants home he is at a hospice right now. He needs 24 hour care and rarely knows where he even is. I live a 5 hour car drive away from my dad. So it’s heartbreaking and I feel like I’m wasting time that I’ll never get back with him but my whole life is down here. It’s so hard, if you ever want someone to talk too you can talk to me.