We understand that people with cancer are worried about coronavirus. Here is the latest guidance. We will update it regularly.

Ask about leukaemia

Ask Caroline, a Macmillan Nurse working with people who have Leukaemia, Myelodysplasia and Myeloproliferative diseases. She'll aim to respond within 2 working days.

at risk query

Posted by

i have hairy cell leukaemia, i was diagnosed at 37, they think i developed it at 29, i had a course of pentostatin and achieved a full remission. i have had no relapses and am now 52, relatively well. 

i am reluctant to pester the GP with everything else they need to deal with right now but i really need to find out if i belong on the "at risk" list for possible complications of corona virus. it says blood cancers but doesnt mention ones in remission. am confused and dont know wether i should be still going to work, i am social distancing but not isolating so far.

thank you for nay clarificaiton 

Wendy x
Posted by

I too have HCL. I believe we are in the at risk group. I don’t know the answer to whether we are in the extremely vulnerable list, but we will hear from Tuesday if we get a letter. In the meantime take the precautions you are comfortable with. 

take care

wendy x

Wendy x

Caroline- Macmillan

Thank you Wendy,

I have just finished watching the briefing and was going to say the same. Stay safe

Caroline - Macmillan  Information Nurse Specialist

Remember you can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or by email.