We understand that people with cancer are worried about coronavirus.
Here is the
We will update it regularly.
Go to your personalised cancer information and support area
Existing Macmillan user? Access your events, volunteering and Macmillan Online Community
A support group for anyone affected by leukaemia to come together, share experiences...
Although we make every effort to ensure accuracy, Macmillan Cancer Support cannot accept liability for this information, or for third-party information such as other websites to which we link. If you are concerned about your health you should consult your doctor. Please bear in mind that your question can be read by others - don't post your contact details or any other information that could personally identify you. All answers will be based on information that is correct at the time of posting.
Hi, My Mum was diagnosed with AML in November 2019, and has since had once round of Chemo which has reduced the cancer cells. But even though she has been told by the doctors that the treatment is ongoing, she does not seem to understand that this is going to be with her for a while and further treatment is necessary. Is there some way that I can get hold of the information on her current care plan so that I can talk through this with her.
I am not sure she is asking for (and therefore not getting) the right information. A bit head in the sand at the moment.
Any advise greatly appreciated
lovely to hear from you. This is a typical scenario as some peoples coping mechanism is to put their head in the sand as they cannot process all the information- which is fine until you have family who need to know all the details for them to process!
You need to tread gently here as giving her the information could make her distressed. However, it is important that you have the information to hand in case she doesn't understand or is afraid to ask.
Because AML treatments are more tailored to each individual person now, it would be best to ask your mothers CNS or medical team. That said, AML treatments have different pathways based on knowledge gained at the end of each treatment and although there may be a general plan in place, it may change. The CNS may also be able to help you gauge your mothers knowledge or lack! At the very least , talking to the team will give you the knowledge that you need should the conversation come up with your mum.
I hope this helps.
Caroline - Macmillan Information Nurse Specialist
Remember you can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or by email.
Safe payments by:
We're here to provide physical, financial and emotional support. So whatever cancer throws your way, we're right there with you.
© Macmillan Cancer Support
© Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man
(604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company
number 2400969. Isle of Man company number 4694F. Registered office: 89 Albert Embankment, London SE1 7UQ. VAT no: