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im really fatigued since being on imatinib from Oct 2016, i keep telling my consultants-i have a different consultant every appointment-and my G.P but they dont seem to be trying to find out why. The consultants just mutter about it not being the imatinib,they say it wont get worse if it was the imatinib due to the length of time ive been on it, then put in the usual letters sent to the G.P im complaining about it the fatigue, even though im not, im just asking questions. Because of this, can I tell my consultants i want to go treatment free to see how the fatigue is? surely if the consultants are right the fatigue will stop?
the fatigue is the Imatinib- there are numerous papers on the subject and it is a very common side effect of Imatinib. For those affected by this side effect, it can be debilitating. Here are some coping strategies that might help. Ask your doctor about anaemia, if your haemoglobin is lower that your normal, this may also contribute to the fatigue.
You don't meet the criteria for stopping Imatinib, as you haven't been on it long enough, however, there are other TKI ( the group of drugs for CML) that you could change to. Stopping the medication at this stage may make your CML worse.
I hope this helps and if you need to discuss this more- just come back to me
Caroline - Macmillan Information Nurse Specialist
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