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Hi caroline..my sister was diagnosed June this year with cll.stage 1..she was told she on watch wait...we were at hospital today for bloods and seen doctor.he said her bloods not changed much since august..no treatment..told him that her night sweats really bad..tiredness is unbelievable.for example on sunday she was asleep 5times in that day for cpl few hrs at a time.and also she been suffering from really sore back last few weeks..her night sweats been going on since febuary this year.that why discovered cll..my sister said when she does wake up after sleeping her head is pounding and feel rotten...she just turned 50 this year.doctor today said he would get a CT scan done before she goes back up in 6weeks...but told her no the symptoms she got wnt be cll but probably the menopause.she felt really upset after appointment..she felt as if the doctor thot she was just making these symptoms up...she still has a 12yr son look after...she saying to me.that it's pointless even going bk up to the clinic now.
I am so sorry to hear that your sister is having such a horrible time. I don't think that her doctor felt that she was making the symptoms up. It would be worth going to her GP to have a hormone profile checked, even if its only to rule out the menopause. She is however, the right age and the symptoms would tally.
If the hormone profile shows that she isn't going through the menopause, then go back to your haematologist.
I hope this helps.
Caroline - Macmillan Information Nurse Specialist
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