We understand that people with cancer are worried about coronavirus. Here is the latest guidance. We will update it regularly.

Ask about leukaemia

Ask Caroline, a Macmillan Nurse working with people who have Leukaemia, Myelodysplasia and Myeloproliferative diseases. She'll aim to respond within 2 working days.

Hydroxycarbamide and really sensitive teeth

Posted by

Hi Caroline, I've been taking hydroxycarbamide (1.5 GM daily) for about 8 weeks, while I await a stem cell transplant for my atypical cml. Within the last few days, I've started to experience pain from sensitive teeth. There's no bleeding from the gums, but I wondered if this sensitivity is related to the treatment. I'm using Sensodyne toothpaste, and Corsodyl mouthwash in between brushings. Any advice gratefully received. Thanks very much.

Caroline- Macmillan

Hi there,

it is fairly common for hydroxycarbamide to cause mouth ulcers and bleeding gums. it can also cause sensitive teeth and gums. Try using a  toothbrush designed for children as the bristles are softer.

These side effects usually settle after  a period of time. Keep doing what you are doing and if the pain does not settle, speak to your team about pain relief mouthwashes.

Caroline - Macmillan  Information Nurse Specialist

Remember you can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or by email.  

Posted by

Hi and welcome to the Community.

I am Mike and I am dropping in past from our dedicated Stem cell transplants for blood cancers (SCT) support group.

Having been through two SCTs with cells from my brother I totally ‘get’ the rollercoaster of a journey you are about to go on.

The SCT support group is a great place to ask questions, find out what helped folks get through the process and basically to talk with folks who understand.

What not introduce yourself to the group by following the link above and join the group by hitting the ‘Join the Group’ tab just under the main group name and it is worth indicating how you want to receive email notifications when someone answers your posts.

Go to the 'Start a Discussion' tab just under the main group name and set up your own Discussion.

We have a number of folks from a CML background.

Mike - Thehighlander

It always seems impossible until its done - Nelson Mandela

Click to see how to add details to your profile