Ask about leukaemia

Ask Caroline, a Macmillan Nurse working with people who have Leukaemia, Myelodysplasia and Myeloproliferative diseases. She'll aim to respond within 2 working days.

Life after Leukaemia

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I’m looking for a support group for parents with children who have had Leukaemia? I have a 6 yr old daughter who finished her treatment in October of last year and I am suddenly feeling very anxious and crying all the time and I don’t know why. 

The only groups I can find are people going through it now or people who have had the Leukaemia themselves in the past and this isn’t really what I looking for. 

Thanks in advance. 

Susannah x

Caroline- Macmillan

Hi Susannah,

I'm sorry that you are feeling this way, however I am not surprised, as it is completely normal. Your little girl has been through a lot and you as her mum, have too. The CNS at the hospital should be able to point you in the direction of local support groups for parents but you could try bloodwise, leukaemia care, children with cancer and CLIC .

However, after what you have been through, it might be more value for you to see a counsellor. This will be a safe place for you to talk about how you feel and help you process them. This is all very raw and the comfort blanket of the very regular clinic appointments has been loosened. Coupled with exhaustion- it can make you very vulnerable. A support group may not be the right environment for you just at the moment.

Your GP may have a counsellor attached to the surgery or you can access counsellors through the local Macmillan Information and support centre or Maggie's centre.

I hope this has been helpful. in the meantime, if you need to talk to someone, the number below is free and someone is ready to listen.

Caroline - Macmillan  Information Nurse Specialist

Remember you can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or by email.