Ask about leukaemia

Ask Caroline, a Macmillan Nurse working with people who have Leukaemia, Myelodysplasia and Myeloproliferative diseases. She'll aim to respond within 2 working days.


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First of all Hello to you  Caroline,I have tried to find out more on my MPN being PV,I get burning feeling on the backs of my arms, some times on the forearm the only thing I can find that comes close is Erythromelalgia, but says its only in the Extremities,?does it affect parts mentioned?

Thanks in Advance

Direction is relative, where ever you go, there you are.
Caroline- Macmillan

Hi Dawie,

Apologies for the delay in answering. Burning sensations on the hands, arms, legs and feet is very common with PV. There are some useful tips on MPN voice about PV and how to manage it. You don't tell me your age or what treatment you are receiving, but it is very important that you let your team know about these symptoms as it can help decide treatment options.

Best wishes

Caroline - Macmillan  Information Nurse Specialist

Remember you can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or by email.