A support group for anyone affected by leukaemia to come together, share experiences...
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My wife was diagnosed with CLL in January aggressive B cell histological CLL . It has now spread to her back , both sides of neck and left anterior bone . The oncologist is worried about a transformation . The Pet scan shows avidity suv of 28.9 on one side of the neck and 18.1 on the other side . The neck lumps have grown from 19mm to around 5 cm . How likely is to be a transformation into high grade lymphoma . On one research paper i found it says 90 percent of suvs above 11 are high grade . Really worried now although my wife does not have IGH mutation in fish analysis . we find out on Monday 20 th but she did previously have DBCL stage 4 in 2015. Many thanks
kind Regards Abid
I am SO sorry that I didn't reply. I had a few technical issues last week and I am only seeing this now. I hope all went well. If you have any further questions, please get in touch
Caroline - Macmillan Information Nurse Specialist
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