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Ask Caroline, a Macmillan Nurse working with people who have Leukaemia, Myelodysplasia and Myeloproliferative diseases. She'll aim to respond within 2 working days.

Essential thrombocytopenia

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Hi I am trying to find a group or have link to people  who are diagnosed with essential thrombocytopenia. It's not listed on the list of cancers on this site. I don't have any information on this..I have no support from NHS except the prescribing of the chemo tablets

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Caroline- Macmillan

Hi BazzaET,

I am sorry to hear this as there is a fabulous charity called MPN Voice specifically for ET, PV and Myelofibrosis patients. They have all the information about the condition and has been set up by the national experts.

Hope you find it useful

Caroline - Macmillan  Information Nurse Specialist

Remember you can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or by email.