A support group for anyone affected by leukaemia to come together, share experiences...
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Hi I am trying to find a group or have link to people who are diagnosed with essential thrombocytopenia. It's not listed on the list of cancers on this site. I don't have any information on this..I have no support from NHS except the prescribing of the chemo tablets
I am sorry to hear this as there is a fabulous charity called MPN Voice specifically for ET, PV and Myelofibrosis patients. They have all the information about the condition and has been set up by the national experts.
Hope you find it useful
Caroline - Macmillan Information Nurse Specialist
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