Ask about leukaemia

Ask Caroline, a Macmillan Nurse working with people who have Leukaemia, Myelodysplasia and Myeloproliferative diseases. She'll aim to respond within 2 working days.


Posted by

Hi there, 

After weeks of chaos we have finally had a diagnosis for my dad that he has the extremely rare Aggressive NK Cell Leukemia (ANKL). 

I am struggling to cope mentally with what we're being told and take in the third (and now final) confirmed diagnosis, (extensive tests provisionally thought he had Aplastic Anemia, leukemia then lymphoma). Having to deal with and digest so much information in 4 weeks has been a huge shock to the system. I am now struggling to sleep with worry and upset over dad so decided to come to Macmillan. I have tried to find a group on NK leukemia but it appears that is just how rare this is as I can't find anyone else to unload to. Am I not searching hard enough or is there not a forum for this type of cancer? 

Kindest regards, 


Caroline- Macmillan

Hi Sam ,

I am very sorry to hear this, welcome to this page. NK leukaemia is very rare and that's probably why you haven't been able to find a forum expressly for this type of condition. The Canadian cancer society have a really informative page on this disease which I hope will help. Our carers forum is a fabulous place to get support and advice. The issues that you will have will be similar to yours and everyone supports each other, regardless of the diagnosis. 

If you have any further questions about ANKL or the treatment, come back to me or you can contact the support line on the number below.

Caroline - Macmillan  Information Nurse Specialist

Remember you can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or by email.