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Ask Caroline, a Macmillan Nurse working with people who have Leukaemia, Myelodysplasia and Myeloproliferative diseases. She'll aim to respond within 2 working days.

CART program

Blue99
Posted by

Did they started using this program under the NHS please?

Caroline- Macmillan

Hi there,

I am sorry that it has taken so long to come back to you, my email notifications were down ( which i was unaware of!).

The CART program is only available for paediatrics at present on the NHS.

Hope this helps.

Caroline - Macmillan  Information Nurse Specialist

Remember you can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or by email.  

JaneL - Macmillan
Posted by

Hi Blue99

In addition to the information Caroline has given you, the National Institute for Health and Care Excellence (NICE) has recently recommended Axicabtagene-ciloleucel (Yescarta) for use in adults with refractory or relapsed diffuse large B-cell lymphoma and primary mediastinal large B-cell lymphoma. NICE has also recommended Tisagenlecleucel (Kymriah)  for use in adults with relapsed or refractory diffuse large B-cell lymphoma. These are both now available for CAR-T therapy through the Cancer Drugs Fund in NHS England.

CAR T-cell therapy for these lymphoma patients will be available at seven NHS hospitals as the service is rolled out across the country. However, due to the high risks and complications associated with CAR-T therapy only a small number of patients will benefit from this treatment within NHS just now. There is more information on CAR-T therapy here.

The best person to discuss your suitability for this and any other treatment is your consultant haematologist.

I hope this information is helpful. If you have any further questions, please get in touch via email or phone. You can call us free from landlines and from most mobile phone networks* on 0808 808 00 00 Monday to Sunday 8am – 8pm.

Best Wishes

Jane

Macmillan Information Nurse Specialist

Caroline- Macmillan

Hi

I was at a conference last week and have more information for you on CART cells.

There are now 7 centres in the UK ready ( or have recently commenced) the CAR-T programme. They are UCH, Kings, University Bristol, Newcastle, The Christie, Manchester Royal Infirmary and QE in Birmingham. They will be giving the treatment for DLBCL patients only and are predict that they will treat up to 200 patients this year.

To see if you are eligible for such treatment, you need to discuss it carefully with your haematologist and then they need to refer you for assessment.

I hope this helps

Caroline - Macmillan  Information Nurse Specialist

Remember you can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or by email.