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Hi all had CLL for a while now been on the watch and wait but last visit dr said I would be needing treatment soon would like some info on what too expect ie will I be ill as I look after my wife who is disabled
Firstly you need to discuss your responsibilities at home with your consultant so that he can make adjustments to your treatment plan/ decide on which drugs to give you as necessary. This is important as you don't want to be worrying about caring for her when you are going through treatment. It may also be worth asking to speak to a social worker so that you can see if you could access help if you need it when you are going through your treatment. That said, CLL treatment, is usually well tolerated but it would be a safety net for you both.
I have enclosed this link to the Lymphoma Action page discussing CLL and all the treatments. This provides really good information that I would only be repeating here. There may also be clinical trials in your hospital available for CLL patients and your haematologist will discuss these with you if you are eligible.
For predicted side effects such as nausea and a sore mouth ( as chemotherapy can make your mouth sore), the team will prescribe medication such as anti sickness tablets and mouthwashes to help prevent these becoming too much of an issue. Other medications used to control side effects would be laxatives or antibiotics.
This is a general overview, but if you have any more questions, please comeback to me.
Caroline - Macmillan Information Nurse Specialist
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