Worried

Hello,

I am worried and I looking for some hope, please.

I have recently been diagnosed with radiation enteritis. The doctor frightened me and didn't give me any hope. I am wondering if it maybe something more "ominous".

I have been experiencing bowel obstructions (colostomy and an urostomy). I had a previous bowel obstruction in February and I had a CT scan. I was told there wasn't anything "ominous", it is the scar tissue which was causing the problems. My blood tests were really good too. I will point out the radiation enteritis wasn't picked up on that occasion.

I feel fine, just very scared and I don't want to eat because the doctor told me (from last week) to go on a liquid diet but when I asked for information, he told me he isn't a dietician! I was in tears. 

Apart from yourselves, no is helping me. I feel totally lost.

Love and good vibes,

  • Hello,

    Thanks for getting in touch with the nursing team.

    It sounds like you’re in the midst of a really terrible time and I’m sorry to read how lost you feel right now.

    We would suggest  that you need the support of a specialist dietician and we’re wondering if this is being arranged for you ?

    Being told to establish a liquid diet must feel daunting and it’s important to get some advice to make sure your nutritional needs are met.

    This article has some general dietary advice for managing radiation enteritis.

    This paper discusses pelvic radiation disease and you’ll see it talks about the importance of micronutrients and the role they play in in meeting nutritional

    needs, maintaining homeostatic immune, and providing antioxidant functions.

    It also states “the risk of malnutrition, should be managed with proper screening, assessment, and nutritional interventions individualized to the patient’s own nutritional and medical needs.”

     

    It’s understandable that your reaction is to not want to eat and that’s why we’re suggesting that you need dietician advice as soon as possible.

     

    Is this something you feel able to ask your doctor about? Is there someone else involved in your care who can make this referral for you if it’s not already underway?

     

    Would it help to call the nurses on the support line to talk things through?

     

    We’re not dieticians but we’d be happy to offer any suggestions we can .

     

    We don’t want you to feel alone in this and I’m sure the members of the Online Community will offer words of support too.

     

    Best wishes and take care,
    Elise

    Cancer Information Nurse Specialist

     

     

  • Hello,

    Thank you for getting back to me.

    I am speaking to my GP next week. That was the earliest I could get an appointment. 

    The surgeon at the hospital was dreadful. I have reported him and he should have referred me to a dietician. 

    I am extremely annoyed that no one has told me anything about radiation enteritis or PRD. 

    Thank you for your help.

    Lisa

    xxxxxxxxxx