Hi. My husband was diagnosed with a GBM stage 4 last Sept. He had surgery and the 6 weeks of chemo-radiation then declined any further chemo or treatment. Physically he's still very fit. (He's 51 and a marathon runner) He can still run which is a blessing but of late he's commented a few times that he never feels thirsty. Should I be concerned about this? He is still drinking plenty of fluids but that's because he knows he should rather than because he feels the need to.
He also frequently feels very cold to touch but says he's warm enough.
I'm just concerned that these may be neuro-endocrinological changes and potentially a sign of his health deteriorating.
Hi Wee me,
Thanks for getting in touch. Worrying about any new changes with your husband is only natural to do when he has a diagnosis of GBM.
At times people can have no thirst or feel less inclined for the need to drink. This can be normal to happen as we also get fluids from our diet.
However, if you’ve seen there is a significant change in the need for fluids, with your husband and without apparent cause, we would advise he reports this to his GP or specialist team. They can then assess if there may be any underlying factors/illnesses that may be causing this and to check if he may have any dehydration due to his lack of want for fluids.
If you are also concerned that it may be related to his GBM, you should contact your husband’s specialist team for further advice. As the team know your husband’s history and care well, they will be best placed to advise if they feel this could be related to his GBM.
Feeling the cold more can be related to many things, such as age, medications or a possible underlying health condition. If this is a new or worsening symptom for your husband, we would also advise discussing this with his GP or specialist team.
Unfortunately, from a message alone it is difficult for us to fully assess or advise what may be causing this. It would require your husband to be reviewed by a doctor and most likely in person. We also are not directly part of the NHS and have no access to patients records that allows us to offer more individual advice around what may be causing your husbands symptoms. His GP or specialist team would want to be made aware of any new changes or concerns to allow them to offer you both advice and support
Macmillan Cancer Information Nurse Specialist
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2020
© Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 89 Albert Embankment, London SE1 7UQ. VAT no: 668265007