Hi . Desperately need help . My partner has been diagnosed with possible cancer of bone in hips and fragmented bone in spine . He had biopsy nearly three weeks ago still waiting results and seeing mr Thomas consultant osteopath and trauma next Thursday at Farnham hospital. In the mean Time my partner Is in terrible pain in hips and thighs he can’t walk and can barely stand but not for long coz of pain . We ve been struggling for months now . He cannot walk so when he goes to appointment next week will be v difficult. Is there anyway he could get transport next week though I will need to be with him as it’s important meeting with mr Thomas regards results of biopsy as we do not know what to expect though we expecting the worse . Finding v difficult at home as he cannot walk so therefor cannot get to bathroom . We have purchased a commode which he uses in the sitting . I wash him down a couple tins of week or just face and hands . His feet and toes are v v red n sore and peeling and toes are crusty n sore . He is also weeing a lot and often about 2 or 3 times an hour . All these things are v v concerning and we are finding it hard to cope . He gets v v v depressed and feels that there nothing wrong it all in his head which it clearly is nt . V worried about him. I would ring gp but feel it would be waste of time and we feel v let down by how it’s been treated. He also had cancer last year of the neck and was treated v v quickly my Lisa Pitkin at Guildford royal Surrey St Luke’s which was excellent could nt fault it as was dealt with within 3 months . Would dearly love some help support and answers . Do you have some do home visits at the moment . I totally understand everything different and difficult at this time due to Covid etc . Any answers or help would be most welcome thank you and look forward in hearing from you soon
Thank you for getting in touch, and I’m sorry to hear you are having such a difficult time.
It sounds like your partner needs to be seen by a doctor to assess his symptoms as soon as possible. You can visit A&E or call NHS 111 to get an assessment – they are open 24 hours per day, 7 days per week. Please don’t wait until his next appointment, as any worsening symptom needs to be assessed as soon as possible. When someone has cancer in the bone it is important that worsening pain and problems with mobility are investigated as these can be signs of spinal cord compression, which needs to be treated with urgency.
Once your partner’s current symptoms have been assessed, he can talk to his GP about the support available at home. This might include visits from community nurses, and some areas have Macmillan or palliative care nurses. We can’t arrange these visits directly from Macmillan but a referral can be made by your partner’s GP if it’s appropriate.
You asked about transport to the next hospital appointment. It is often possible for hospitals to arrange transport if someone is well enough to attend but struggles with mobility. Many hospitals are currently offering appointments over the phone to avoid travelling to hospital, and this might also be something you want to discuss. Just call the number on your appointment letter on Monday so they can talk through options for transport or telephone appointments.
Supporting someone with cancer can bring many challenges. Please know that you are not alone. You can call our support line 7 days a week, from 8am-8pm. You may also want to have a look at our online community for friends and family, and you can speak to your own GP about support available to you as a carer.
Lucy - Macmillan Information Nurse Specialist
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