Grade 4 Glioblastoma

Hi 

My 58 year old sister was diagnosed with above 7 weeks ago with no warning or visible signs. Previous to this she was skiing in March , playing golf and climbing mountains !

as the tumour is in her frontal lobes in butterfly shape and is too deep to operate the family were offered radio therapy.

they have made decision not to put her through that as they believe it is too much for her with no good outcome. 
There is 2 young family members o& hubby looking after mum but think they are struggling and I am trying to give as much help and support as possible but of course they feel they want to do it all , which is understandable. 
when I say should we contact Physcii,speech therapist or Macmillan they say no it’s ok they will follow this up . 
just wondering in these situations when would be correct time to speak to Macmillan?

sister cannot walk unaided already, has virtually no speech but is eating well and does know what you are saying to her. She has catheter in already too. 
just want to know best thing to do for my sister and her wee family . Any advice greatly appreciated thanks xx 

  • Hi Irishtwin

    Thanks for getting in touch and for your question. I can appreciate what a difficult time this must be for you all.

    It’s always a difficult decision whether to accept treatment or not especially after such a difficult diagnosis and deterioration.

    Usually if no active treatment is being given there should be a chat about a referral to the local palliative care team. They are there to support the family not take over from them if they wish to do as much as they can themselves.

    Your sisters GP can do a referral and now would be a good time to get that support started.

    Supporting someone you love with cancer can be an emotional time. I know that you are wanting to look after her wee family but please make sure that you are looking after yourself as well.

    We have a very supportive family and friends group that you might find helpful to join.

    I hope this is helpful, please do not hesitate to contact us on the support line if you have further questions.

    Best Wishes

    Fiona

    Cancer Information Nurse Specialist