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My husband was diagnosed with GBM4 in December 2019. He had a craniotomy in January, followed by 6 weeks of radiotherapy and chemotherapy. After a 4 week pause for recovery, he is now part way through 6 months of further chemotherapy treatment. He has greatly improved in terms of physical and emotional well-being since the fatigue from the radiotherapy has been wearing off, and a recent scan was good. However, we know that the cancer will come back, and that most people with this diagnosis do not live beyond a few years. Although things are going well for now, I want to know what to expect when the cancer becomes active again. Will he deteriorate quickly? What will the signs be? No-one has talked to me about this, but it would help me if I had some idea how things are likely to go.
Thank you for your post. I am glad to here that your husband is doing well on his current treatment line. It’s natural to feel anxious about the future.
It is hard to say when and how quickly you husband will deteriorate when his cancer becomes active again. Every patient deteriorates at a different rate. Your husband may experience similar symptoms to when he was first diagnosed.
It’s important that if he starts experiencing these symptoms again that he get reviewed by his treatment team. His treatment team may be able to offer him further treatment to help control the symptoms and slow down the growth of the cancer. To do this his treatment team may offer further chemotherapy depending on your husbands’ general health. If chemotherapy is not an option, they may discuss medications which can help control symptoms he may experience.
If you get the news that your husband has terminal cancer. You may feel a variety of emotions. This is natural. It is also important to know what support will be available to you when this does happen.
If you would like to discuss this further please don't hesitate to call us on 0808 808 00 00.
If symptoms starts appearing again then you should contact your treatment team, that is the best approach in my opinion.
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