My mother who is now 76 was diagnosed with TCC of the Renal Pelvis in December 2018 after experiencing macroscopic blood in her urine. In January 2019 she had a radical nephrectomy along with the removal of her ureter. This was performed by keyhole robotics. In March 2019 we were informed it was G3 PT3 NX M0, but incapsulated within the Renal Pelvis/kidney & localised thank god. I asked her oncologist professor if he could check her lymph nodes & he said there was no need as the scan would have shown swelling had nodes been involved. Since she has had quarterly cystoscopies, CT contrast chest abdomen & Pelvis along with CT Urogram, thank God everything is clear. It’s only when we got home we read the discharge note that says blood trace, which wasn’t discussed with us at all during the cystoscopy, we were just told all clear! Urine dipstick was negative for infection, the blood must be coming from somewhere! Please Help?
Thanks for getting in touch. It’s only natural to worry when you see something written on a discharge note that’s not been discussed. Mothers are precious to us, so it’s understandable you want to know more.
As nurses on this type of service we’re unable to access personal information so it would be difficult for us to give a specific answer for the blood to be present. It’s estimated that no cause will be found in about half of people presenting with a trace of blood in their urine, or non-visible haematuria. For others, Kidney disease, viral illness, exercise and having urological procedure carried out can be the reason.
It’s good to see that your mother is being closely monitored and everything has been clear. This may just be an anomaly, but it might help to speak with your mother’s hospital team about it. They will either be able to reassure you this is nothing to worry about, or they will be able to discuss if further steps are needed.
I hope things settle and your mother continues to stay well. If we can help with further information please don’t hesitate to get back in touch.
Take care, Linda (Cancer Information Nurse Specialist)
I took a urine sample to my mothers GP who also carried out a dipstick test & thank god this time no blood trace! I also requested they send the sample off to check for cancer cells which they have. I have also now spoken to my mums oncologist who says there’s nothing to be worried about as all tests were negative!
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