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Tki treatment kidney removed 5 years ago just been told it has spread to pancreas

Ian436
Posted by

My left kidney was removed 5 years ago. I thought all was fine just been told it has now shown in my pancreas. Waiting for biopsy but told I will likely get tki treatment. Looked online side effects look terrible

Ian436
Kayleigh-Macmillan
Posted by

Hi Ian436,

Thank you for getting in touch with us and welcome to the Online Community. I can see that you’ve also been an active member in the kidney cancer group too. There’s nothing quite like getting support from others who truly understand what you’re going through.

It sounds like you’ve been through a lot emotionally recently, you will have a lot on your mind, including many questions. Waiting for tests, investigations and results to confirm a diagnosis can be a very overwhelming time. For some people it can feel like the longest wait. Understandably, the news of areas of concern in the pancreas must have come as a shock. Please be reassured, there is no right or wrong way to feel right now. There’s also no rule book on how you should be coping or processing the information that the doctors are giving you.

Looking at the side effects listed for treatments can be discouraging. Some of the lists can be quite long too which can instantly add more worry to an already difficult situation. Although there are a lot of side effects listed, this doesn’t mean they will all happen to you. Treatments affect us all in different ways, it’s difficult to predict how they will affect us until we try the treatment.

Tyrosine Kinase Inhibitors (TKIs) aim to block the proteins (Kinases) from sending signals within the cancer cells to try and stop them from growing and dividing further. This of course can upset our system and in turn cause some side effects.

Once you’ve had your biopsy and your hospital team know more about the spots in the pancreas, they will then give you more specific information about the treatment. They should also give you contact numbers so that if you do experience any side effects you can contact them. This allows them to support you the best that they can. Most side effects can be managed with other medications. You might also be appointed a Clinical Nurse Specialist (CNS) for extra support too.

The concerns that you have are understandable, it might feel like a bit of a whirlwind right now with all the information you’ve recently been given by your hospital team. Please know we are here to chat and listen if you need to talk. The support line is available 7 days a week, 8am-8pm. As well as providing information, we also provide a listening ear. It might be helpful just to talk things through.

Best wishes and take care,

Kayleigh-Cancer Information Nurse Specialist
Ian436
Posted by

Thanks for the response. Every. It of information helps at this time

Ian436