Although we make every effort to ensure accuracy, Macmillan Cancer Support cannot accept liability for this information, or for third-party information such as other websites to which we link. If you are concerned about your health you should consult your doctor. Please bear in mind that your question can be read by others - don't post your contact details or any other information that could personally identify you. All answers will be based on information that is correct at the time of posting.
I'm not sure you're the right person to ask this so I'm grateful for your time either way.
This has all happened in less than a month.
My mother has been diagnosed with Stage 4 High Grade Uterus Cancer. She has dual citizenship and residency here in the UK. She's had surgery to remove all of the cancer and they've said they got it all but are sure there will be some microscopic cells left so she's also having a round of chemo using carboplatin only. Again, this is being done in the States.
My question is, when her chemo is done, she'd like to come home and live with me, what is the protocol for checkups and follow up treatment here in the UK?
Can you point me in the right direction of who to ask?
A concerned Daughter
Thanks for getting in touch and welcome to the online community. I appreciate you want to get organised before your mum comes back to the UK after her cancer treatment is completed in the States.
When returning to the UK from abroad access to NHS non-emergency care is dependant on providing evidence that your mum will be an ordinary resident in the UK permanently. NHS secondary care is residency based rather than being based on having citizenship.
Generally, in the UK follow up would be decided by the Multi-Disciplinary team that decided her treatment on its completion. This is decided on the risk of recurrence, side effects of treatment and any other complications. The traditional follow-up of gynaecological cancer follows the same clinical pathway based in secondary care with clinical examinations every three months for the first three years and annually for the subsequent two years. The British Gynaecological Society recommend for women with high risk endometrial cancers, it is reasonable to use a more rigorous follow-up schedule, with more frequent visits in the first two years, up to five years.
So, it would be important for your mum to have all her medical notes with her, register with a GP to make as referral to a local oncologist specialised in uterine cancer. Although her doctors in the States may have recommended a follow up protocol, the UK process may not be the same. But it would be based on the information on her cancer from her medical team in the States.
If we can help with further information or support, please don’t hesitate to be in touch. And if you’d like to speak with our support line staff we’d be happy to hear from you. We’re here 7 days a week, 8am-8pm.
Jane Macmillan Information Nurse Specialist
Safe payments by:
We're here to provide physical, financial and emotional support. So whatever cancer throws your way, we're right there with you.
© Macmillan Cancer Support
© Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man
(604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company
number 2400969. Isle of Man company number 4694F. Registered office: 89 Albert Embankment, London SE1 7UQ. VAT no: