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Hi .. my mum was diagnosed with bladder cancer on Wednesday.. we got very little information from the consultant apart from that couldnt remove all the cancer and her bladder is in a bad state.. and he will write to her doctor and we should regiseter with Mcmillan nurses... she is in no pain ,she is not bleading .she is eating very well and we are a bit confused. all we have been told is to contact her dr if she starts bleading.. is my mum going to die with in weeks or months .. we dont know,. she lives on her own. is she likely to start bleeding in her sleep and we find her dead.. ?? i know consultants are busy, but we have no idea what to expect or when to expect it.. are you able to give mesome information please,. as the internet says you can live for about 5 years without treatment. but at my mums age thats not likely..
I look forward to hearing back trom you
thank you in advance
Hi Lynne, thanks for your post and welcome to the online community.
When someone close to you has cancer, it can be a lot to take in and sometimes all your questions are not answered at the initial consultation. With your mums permission you can contact the consultant’s secretary to make an appointment to ask the questions you have.
Her GP can answer some of your questions, however, the consultant has the information about prognosis (how long someone has to live).
It’s good that your mum is not having any symptoms just now as it gives her the opportunity, while she is feeling well, to be referred to the community palliative care team. These specialist nurses may be from Macmillan or the local hospice and the GP can refer your mum to them.
When someone is at home their GP is responsible for coordinating their care and any support they can put into place now, or as her condition changes.
It is difficult to say what symptoms your mum may experience as her cancer progresses. Your mum may not experience any bleeding, but it can be a sign that things are changing in the bladder. That’s why you should let her doctor know if it does happen as they can prescribe medications to help. You mention you worry that she will bleed to death in her sleep, please be reassured this is unlikely to happen.
Many people find our supporting someone with incurable cancer group an invaluable source of support. It’s a safe place to share your concerns and thoughts and be supported by others going through a similar situation.
We often find we can help more by having a chat over the phone, it makes exploring these complex needs and difficult questions you may have a little easier. If this is something you think you may benefit from, then please don’t hesitate to get in touch. Our support line is open 7 days a week, 8am – 8pm on 0808 808 0000. Alternatively, your welcome to post another question.
Please don’t hesitate to get back in touch.
Kate – Macmillan Information Nurse Specialist.
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