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Blood clots in urine

iD96
Posted by
  1. My daughter, who is 23, had Hodgkins Lymphoma 3 years ago and has been in remission for 2.5 years after treatment with ABVD. 2 days ago she had several small blood clots in her urine, frequency and pain at the end of her stream. We went to out of hours and they dip tested the urine and gave her trimethoprim. This worked a treat but I am concerned it could be something more sinister as a result of the chemotherapy treatment. She was also treated for a UTI - without visible blood- a few months ago.  I wonder should I encourage her to visit her GP about this? 
Carole F - Macmillan

Hello iD96

Thanks for getting in touch. It’s great to hear that your daughter has been in remission for 2.5 years.

It’s difficult for us on this type of platform to say what could be causing your daughter’s UTIs.

The immune system should recover over time after treatment for lymphoma, although some people do have problems with immunity for a year or two after treatment.

UTIs are common, but we’d recommend your daughter gets in touch with her haematology team if she’s still being followed up, or her GP. Not because we think anything sinister is going on, but because they’d want to know about any new symptoms or problems.

I hope this is helpful. Please don’t hesitate to get back in touch if you have further questions. Or if you’d prefer to talk things through with one of the nurses, we’re here 7 days a week, from 8am till 8pm.

Best wishes

Carole (Macmillan Information Nurse Specialist)

iD96
Posted by
  1. Thank you so much for your speedy reply Carole. My daughter is extremely unwilling to contact her haematology team but I will try to persuade her. She says that since she had a check up just last week where they checked her lymph nodes and bloods that all is well. She feels I am being overly cautious. 

Thanks again 

Kelly A - Macmillan

Hi iD96,

Thanks for getting back in touch. I’m glad you found Carole’s reply helpful.  It’s good to hear that your daughters check up went well last week.

It’s not unusual for young adults to want to take control of their own health especially after going through treatment for cancer. It sounds like you are doing an amazing job by supporting your daughter with this and encouraging her to seek support when necessary.

You know we’re here for you if you have any further concerns.

Best wishes,

Kelly (Macmillan Information Nurse Specialist).