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Blood clots in urine

iD96
Posted by
  1. My daughter, who is 23, had Hodgkins Lymphoma 3 years ago and has been in remission for 2.5 years after treatment with ABVD. 2 days ago she had several small blood clots in her urine, frequency and pain at the end of her stream. We went to out of hours and they dip tested the urine and gave her trimethoprim. This worked a treat but I am concerned it could be something more sinister as a result of the chemotherapy treatment. She was also treated for a UTI - without visible blood- a few months ago.  I wonder should I encourage her to visit her GP about this? 
Carole F - Macmillan

Hello iD96

Thanks for getting in touch. It’s great to hear that your daughter has been in remission for 2.5 years.

It’s difficult for us on this type of platform to say what could be causing your daughter’s UTIs.

The immune system should recover over time after treatment for lymphoma, although some people do have problems with immunity for a year or two after treatment.

UTIs are common, but we’d recommend your daughter gets in touch with her haematology team if she’s still being followed up, or her GP. Not because we think anything sinister is going on, but because they’d want to know about any new symptoms or problems.

I hope this is helpful. Please don’t hesitate to get back in touch if you have further questions. Or if you’d prefer to talk things through with one of the nurses, we’re here 7 days a week, from 8am till 8pm.

Best wishes

Carole (Macmillan Information Nurse Specialist)

iD96
Posted by
  1. Thank you so much for your speedy reply Carole. My daughter is extremely unwilling to contact her haematology team but I will try to persuade her. She says that since she had a check up just last week where they checked her lymph nodes and bloods that all is well. She feels I am being overly cautious. 

Thanks again 

Kelly A - Macmillan

Hi iD96,

Thanks for getting back in touch. I’m glad you found Carole’s reply helpful.  It’s good to hear that your daughters check up went well last week.

It’s not unusual for young adults to want to take control of their own health especially after going through treatment for cancer. It sounds like you are doing an amazing job by supporting your daughter with this and encouraging her to seek support when necessary.

You know we’re here for you if you have any further concerns.

Best wishes,

Kelly (Macmillan Information Nurse Specialist).

 

 

 

 

 

 

 

iD96
Posted by

Hi Carole

I eventually persuaded my daughter to visit GP as she has been experiencing some tummy pain too. They ran a whole battery of blood tests then she got a call from the receptionist the other day to say her folic acid levels were low and to pick up a prescription. She is happy with this and thinks all is  ok now as she’s had no more UTIs and feels her pain is constipation- but I think that given her history she should be querying the reason for the low folic levels ( she eats a good diet but had been on holiday just prior to bloods) and discussing results with a doctor, not the receptionist. Do you think I am right or being over cautious mum? 

Regards

Donna - Macmillan
Posted by

Hi

Thanks for your post. My name’s Donna & I’m also one of the nurses on the Macmillan Support Line. I’ve read your conversation with my colleagues and can understand why as a Mum, you’re worried.

It’s good to hear your daughter visited her G.P. and they’ve carried out some tests. There can be several reasons for low folic acid levels in the blood. It wouldn’t be uncommon for a G.P. to give a short course of treatment then monitor to see if the problem resolves or not. Some G.P.s may even discuss what’s going on with the specialist team. I’m not sure from your e-mail whether your daughter discussed the constipation with her G.P. but it’d be helpful for her to do so, if not.

I’d agree with my colleague Carole, that it’d be a good idea to let the Haematology Team know what’s been going on. They like to be aware of any changes, even if these occur just after a follow-up appointment. I appreciate your daughter has been a bit reluctant to do this and that’s hard for you to accept. If she has the capacity to make her own decisions, then all you can do is pass this information to her and allow her to make her own choice.

Often when our loved ones make a different decision to what we would make ourselves, that can feel uncomfortable. This information about offering support may be useful in keeping the channels of communication open with your daughter.

I know my colleague had invited you to call us if it’d help to talk so please feel free to do so. Sometimes, it can help to chat things through.

Best wishes,

Donna

Macmillan Cancer Information Nurse Specialist