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Letrosole and KIsqali

IamLyn
Posted by

Hi I have currently been prescribed the above for secondary breast cancer - small volume at present in spine.  There are no plans for a mastectomy.  I have been taking Letrosole for two weeks and Kisqali for 3 days now with current side effects does this mean the drugs are not working and I am of course anxious and I have to wait 3 months to see if working although I will be having bi weekly blood tests but the wait is going to be very traumatic especially as I am feeling ok apart from a some depression following diagnoisis

Ellen M-Macmillan
Posted by

Hi ,

Thanks for getting in touch with us.

It’s understandable why you’re questioning whether the treatment is working if you’re not having side effects. But this doesn’t mean that the treatment is not working. Everyone reacts differently, some people have a lot of side effects whilst others don’t seem to have many.

Waiting 3 months to find out if a treatment has worked can seem like a long time. But this is the time that doctors feel that it takes for a comparison scan to give an indication if the cancer has responded. Having a scan to soon can give the wrong results and could cause treatments that are working to be stopped.

The most important thing to remember is the doctors are able to give you a combination of treatments that they feel will benefit your type of breast cancer.

Coping with uncertainty is difficult and it’s common to feel some depression when you’ve had a diagnosis of cancer that can be treated but not cured.

Are you getting support to help you cope with your depression? If not, we would advise that you talk to your GP or specialist nurse in the first instance about how you’re feeling. They should be able to offer you support.

Whilst no-one can take away the worry that you’re going through just now there are some things you can do to help.

It’s also important to talk to others about your cancer and how you’re feeling, as a problem shared can be a problem halved. It’s good to see that you’ve already joined our supportive secondary breast cancer group. There is nothing quite like the support and help that you can get from others who really know what it’s like.

There are ways that we can support you too. You can call our Support Line on 0808-808-0000 and talk to one of our nurses about how you’re feeling.

Best wishes and take care.

Ellen-Macmillan Online Digital Nurse Specialist.