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Hello,had left thyroid out in Nov last,hurtle cell cancer outcome,
After the op surgeon said all ok nothing found also when I left hospital they said all ok
when I saw surgeon 2 weeks later first words were of coarse it’s cancer you know
right side out in January 2019
put on 150mg thyroxin and calcium pills surgeon says he saved most of neck glands
I am awaiting oncology for radiotherapy and have not yet been assigned specialist nurse
question ,why do I feel cold, I dress up with several coats outside
any info on hurtle cell ,I might not have the spelling exact
Hi Bill lea,
Thank you for contacting us
I am sorry to hear you had to have a second operation. This might have been because once the surgeons received the results form the first surgery, they knew it was a Hurthle Cell Carcinoma, and the most common treatment for this type of cancer in the thyroid is a total removal of the thyroid gland. Hurthle cell thyroid cancer is a sub-type of follicular thyroid cancer.
The pills you are taking now will be to replace the hormones the thyroid gland used to make, to prevent experiencing symptoms such as weight gain, feeling tired irritable and depressed. Feeling the cold more might also be a sign of not enough thyroid hormone in your system. It would be advisable for you to talk to your doctor and inform them of this, they might want to check if your hormone levels are in the right place. I can see you have not been assigned a specialist nurse yet, so your GP or the surgical team should be able to give you advise on this.
Radiotherapy after surgery does sometimes happen several weeks after due to the fact, that your wound need to have fully recovered, to prevent any complications. You should expect a letter for an appointment with the Radiotherapy team to plan and prepare you for your treatment. It might be advisable to try and contact the hospital team in the next week to find out if this appointment has been made for you already.
I can see that you have joint our online thyroid cancer group already, thank you, you may wish to continue to visit the group and read about other people’s experiences. It really helps people to talk about their problems. You might find it also helpful to contact one of our specialist nurses on our support line and talk about your issues.
Many thanks for reply I will contact my go and ask for her advise re coldness
i had a oncology date come through today so not long to wait
the is a forum gunning on hurthie cell cancer ,but I don't want to comment on there until I have been to oncology
many thanks I will email when I can regards Bill
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